Registry Elements

Registry Element Name Definition Deprecated
CPRN0072 Birth Length

in cm

no
CPRN0073 Birth Weight

in kg

no
CPRN0074 Bone replaced no
CPRN0083 Left Hip Abduction (hips extended knees flexed) Angle of Catch When Moved Quickly (R1) no
CPRN0084 Left Hip Abduction (hips extended knees flexed) R2 no
CPRN0085 Bowel Problems

by report, can be multiple. currently on meds= yes

no
CPRN0086 Combined Procedures no
CPRN0087 Baclofen Pump Surgery Performed

Indication of whether or not surgery to place a baclofen pump was conducted. Baclofen pump: a programmable device that delivers liquid medication around the clock directly to the intrathecal space in the spinal cord

no
CPRN0089 Type of Baclofen Pump Surgery

New baclofen pump: a programmable device that delivers liquid medication around the clock directly to the intrathecal space in the spinal cordReplacement pump: procedure to place a replacement baclofen pumpCatheter revision: positioning of a tube from the surface of the skin to a major veinWound revision: surgery performed to replace or compensate for a failed implant or to correct undesirable sequelae of previous surgery

no
CPRN0090 Calcaneal Osteotomy to Correct Varus Procedure for Left Side

Calcaneal Osteotomy: an extra-articular, joint-sparing procedure used to correct cavovarus and planovalgus foot deformity

no
CPRN0091 Calcaneal Osteotomy to Correct Varus Procedure for Right Side

Calcaneal Osteotomy: an extra-articular, joint-sparing procedure used to correct cavovarus and planovalgus foot deformity

no
CPRN0092 Left Hip Abduction (hips extended knees flexed) Modified Tardieu Scale no
CPRN0093 Callosity Present – Left

Callosity: a thickened and hardened part of the skin; a callus.

no
CPRN0094 Callosity Present – Right

Callosity: a thickened and hardened part of the skin; a callus.

no
CPRN0095 Who are the caregivers?

Type of relationship that the person who serves as the participant/subject’s primary caregiver has with the participant/subject. (NINDS)

no