Registry Elements
| Registry Element | Name | Definition | Deprecated |
|---|---|---|---|
| CPRN0072 | Birth Length |
in cm |
no |
| CPRN0073 | Birth Weight |
in kg |
no |
| CPRN0074 | Bone replaced | no | |
| CPRN0083 | Left Hip Abduction (hips extended knees flexed) Angle of Catch When Moved Quickly (R1) |
Assessed supine with hips extended and knees flexed move limb quickly (V3) into abduction measuring angle of catch or clonus of adductors (R1). |
no |
| CPRN0084 | Left Hip Abduction (hips extended knees flexed) R2 |
Assess supine with hips extended and knees flexed move limb slowly (V1) into abduction measuring full range of motion (R2). |
no |
| CPRN0085 | Bowel Problems |
by report, can be multiple. currently on meds= yes |
no |
| CPRN0086 | Combined Procedures | no | |
| CPRN0087 | Baclofen Pump Surgery Performed |
Indication of whether or not surgery to place a baclofen pump was conducted. Baclofen pump: a programmable device that delivers liquid medication around the clock directly to the intrathecal space in the spinal cord |
no |
| CPRN0089 | Type of Baclofen Pump Surgery |
New baclofen pump: a programmable device that delivers liquid medication around the clock directly to the intrathecal space in the spinal cordReplacement pump: procedure to place a replacement baclofen pumpCatheter revision: positioning of a tube from the surface of the skin to a major veinWound revision: surgery performed to replace or compensate for a failed implant or to correct undesirable sequelae of previous surgery |
no |
| CPRN0090 | Calcaneal Osteotomy to Correct Varus Procedure for Left Side |
Calcaneal Osteotomy: an extra-articular, joint-sparing procedure used to correct cavovarus and planovalgus foot deformity |
no |
| CPRN0091 | Calcaneal Osteotomy to Correct Varus Procedure for Right Side |
Calcaneal Osteotomy: an extra-articular, joint-sparing procedure used to correct cavovarus and planovalgus foot deformity |
no |
| CPRN0092 | Left Hip Abduction (hips extended knees flexed) Modified Tardieu Scale | no | |
| CPRN0093 | Callosity Present – Left |
Callosity: a thickened and hardened part of the skin; a callus. |
no |
| CPRN0094 | Callosity Present – Right |
Callosity: a thickened and hardened part of the skin; a callus. |
no |
| CPRN0095 | Who are the caregivers? |
Type of relationship that the person who serves as the participant/subject’s primary caregiver has with the participant/subject. (NINDS) |
no |
