Today, and in honor of World CP Day, a global campaign to raise awareness about cerebral palsy (CP), we are excited to announce that together with Cerebral Palsy Alliance Research Foundation (CPARF), we will fund two newly proposed and community selected cerebral palsy studies! One study leverages computer vision to improve newborn screening for CP,…
The Cerebral Palsy Research Network is pleased to announce a new milestone publication that establishes critical areas of need for adult health in people with cerebral palsy (CP). These specific areas include bone health, kidney health and preventive care, and the study proposes an agenda for investigating future interventions for adults with CP….
In February 2019, the CP Research Network held a meeting of its Community Action Committee that demonstrated the importance of the role that community members can play in shaping our research agenda. The mom of a young boy with dystonia in CP (DCP), inquired about why more wasn’t being done to improve awareness, diagnosis and…
We are thrilled to congratulate Kristen Allison, PhD, CCC-SLP on her recent publication, “Relation of speech-language profile and communication modality to participation of children with cerebral palsy,” in the American Journal of Speech Language Pathology on January 12, 2024. This is the twelfth publication for the network and, is the result of research funded by…
Next month’s MyCP webinar will focus on a new study that we are conducting to establish priorities in research about adults with cerebral palsy (CP). The webinar will be held on Wednesday, December 6 at 8 pm ET. It will be led by CP Research Network principal investigator Cristina Sarmiento, MD. Dr. Sarmiento and her…
The Cerebral Palsy Research Network has been awarded funds for a three-year study in the classification of pain for adults with cerebral palsy (CP). This study was the subject of October’s MyCP webinar. Classification of pain in adults is fundamental to identifying proper treatments and improving outcomes. Congratulations to co-principal investigators Amy Bailes, PT, PhD…
The Cerebral Palsy Research Network, in partnership with Cerebral Palsy Alliance Research Foundation (CPARF), has awarded its first Accelerator Award, a new internal funding program supported by CPARF to advance critical research questions more quickly. This particular award will be used to prioritize research questions about adults with cerebral palsy (CP). The study, entitled “Priority…
Next month’s MyCP webinar will feature Dr. Laura Gilbert, pediatric neurologist from Washington University who will be presenting the top 10 themes in dystonia in cerebral palsy (CP) research on Tuesday, November 1, at 8 pm ET. Dr. Gilbert will be joined by Dr. Bhooma Aravamuthan, leader of the CP Research Network’s dystonia in CP…
The Cerebral Palsy (CP) Research Network signed a strategic five-year research agreement with the University of Pittsburgh to provide the Data Coordinating Center (DCC) services for its growing research enterprise. Stephen Wisniewski, PhD, Professor, Co-Director of their Epidemiology Data Center, and Vice Provost for Budget and Analytics at the University of Pittsburgh, will become the…
Next Wednesday, September 14th, Dr. Laurie Glader will lead a MyCP webinar updating participants on the progress of our patient-centered research agenda established in 2017 through our Research CP program. Research CP was run by the Network with the goal of setting a patient-centered research agenda for CP. It was funded by the Patient-Centered Outcomes…
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