CPRN (Cerebral Palsy Research Network) news updates everything CPRN is doing for, and within, the cerebral palsy community. You will discover updated research information, new location sites for the Cerebral Palsy Registry, and more for you to check out today!
On Tuesday, May 26, at 8 pm ET, the Cerebral Palsy Research Network will host a live MyCP community webinar about chronic pain in adults with CP. Pain is one of the most common and frustrating issues people with cerebral palsy report. It impacts the entire population from pediatrics through adulthood. There are different types…
The Cerebral Palsy Research Network investigators*, led by Drs. Amy Bailes and Mary Gannotti, have a newly published article about our efforts to improve pain assessment in adults with CP during their healthcare visits. The title of the article: First steps toward pain classification among adults with cerebral palsy: A modified Delphi Study was published…
If you are an adult living with cerebral palsy or a parent raising a child with CP, or a caregiver—this post is for you. Your voice doesn’t just belong in research. It belongs at the center of it. This week, the American Brain Coalition (ABC) launched its new Community Engagement Platform—a flexible training resource for…
Donate Today, March 25, is the federally recognized Cerebral Palsy (CP) Awareness Day! In honor of national CP Awareness Day, our board is matching any donations two to one (2:1) today only! (We also have a MyCP Webinar tonight.) We are excited to announce the winners for our fifth annual CP Awareness Month photo contest….
March is Cerebral Palsy (CP) Awareness Month in the United States and we want you to share your story. Awareness of CP is vitally important to get our society to recognize the physical and social challenges, medical costs and needs of people living with CP. Awareness helps us advance research, educate doctors, nurses, school systems,…
This year, our annual CP Awareness Month photo contest allows you to compete for the same great prizes, but includes the option to fundraise to support our work as well! Photos tell stories without words, but we want our community members to narrate their own stories around who they are and their relationship…
The Cerebral Palsy Research Network is proud to host a special webinar on December 16, 2025, at 8 pm ET highlighting the creation of the Adult CP Toolkit—the first comprehensive, evidence-based health and wellbeing resource dedicated entirely to supporting adults living with cerebral palsy. For decades, most CP resources and research have centered on childhood,…
On Monday, October 27 at 8 pm ET, clinical scientist Liz Boyer, PhD, will share findings of her study about falls in people with CP called “Consequences of Falls in Individuals with Cerebral Palsy.” This presentation is based on data that was gathered in part from our MyCP Community Registry where community members self-report their experiences with…
Today, and in honor of World CP Day, a global campaign to raise awareness about cerebral palsy (CP), we are excited to announce that together with Cerebral Palsy Alliance Research Foundation (CPARF), we will fund two newly proposed and community selected cerebral palsy studies! One study leverages computer vision to improve newborn screening for CP,…
We are excited to share the launch of the Adult CP Toolkit — the first comprehensive guide created specifically for adults living with cerebral palsy. At 172 pages, this free resource brings together the expertise of clinicians, researchers, and more than 50 community members with lived experience to address a critical gap in support…
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