Cerebral Palsy Research Network Blog

Archive for Wellbeing

Here’s a sneak peek at our new website!

Thanks to our merger with CP NOW and new research studies already off the ground, it’s been an exciting year so far for the CP Research Network. So, what’s next? Our new website!   

 Since our January merger, our team has been busy integrating four websites into one to create a new online home – cprn.org – a place where we will bring together our community, research efforts, education, and wellbeing programs.   

Here’s a sneak peek of what’s to come!   

To make things easier to navigate, our one platform, CPRN.org, will feature the four cornerstones of the combined organization:  

1) Community  
Join a committed group of community members on the MyCP platform at CPRN.org. All are welcome, including adults with CP, parents, and caregivers, clinicians, researchers, and advocates shaping impactful research to improve the lives of people with CP.  

2) Research  
The Cerebral Palsy Research pages of our soon-to-be-released site will fill you in on our active studies and highlight opportunities to participate in ongoing research to improve healthcare outcomes for people with CP.  

3) Education  
Please take advantage of our educational resources and programs to help navigate CP from diagnosis to therapies, treatments, and interventions to maintaining mental and physical health and transitioning to life as an adult with CP. You’ll find many toolkits, guides, and resources all ready to download on our education webpages.   

4) Health and wellbeing  
Log on for programs to maintain and improve physical health and wellbeing. We are working with our trusted partners to implement regular opportunities for community members to participate in healthy activities in their communities.  

Excited? We are too! We’ll reveal our launch date soon, but for now, please keep swinging by cpdailyliving.com, cpnowfoundation.org, cprn.org, and mycp.org for everything you need to know about the CP community.    

Want to try a home wellbeing program?

We Have Ten Free Spots Available For A New Wellbeing Program!  Many people with cerebral palsy benefit from a multifaceted approach to managing their condition, combining regular therapies, exercise, and a healthy diet and lifestyle.

As we encourage our community to strive for the best possible outcomes we are delighted to partner with the National Center on Health, Physical Activity and Disability (NCHPAD) to bring its MENTOR program to the cerebral palsy community. 

MENTOR, which stands for Mindfulness, Exercise and Nutrition To Optimize Recovery, is a holistic approach is aimed at restoring, improving, and protecting health across the lifespan.

We are able to offer 10 members of CP Community the opportunity to participate in this free eight-week program throughout the months of April and May 2021.  Participants must be members of the MyCP community and 18 years or older.

During the pandemic, NCHPAD has pivoted from an onsite program for health and wellness, to virtual coaching for exercise, mindfulness and nutrition.  The MENTOR program combines adapted exercise, sport and recreation activities with practical healthy eating cooking classes and mindfulness-based stress management techniques to reduce mental health issues such as anxiety and fear.

“Our health coaches will work closely with the CP Research Network and community members to establish the most beneficial exercise, mindfulness and nutrition programs for people with CP,” says James Rimmer, PhD, Director of NCHPAD. “We are excited to partner on this pilot program with the CP Research Network.”

Participants will be provided with equipment to use at home which they will be able to keep at the end of the training. 

The program with be monitored by CP Research Network’s Mary Gannotti, PT, PhD, a professor of physical therapy at the University of Hartford and member of the network’s steering committee.

Interested members of the cerebral palsy community should send an email to mentor@cprn.org