Cerebral Palsy Sensory Survey
People with cerebral palsy may sense the world around them differently (including with the senses of touch, taste, smell, vision, and hearing). We would like to know how the person in your life with cerebral palsy (either yourself or your loved one) senses the world around them and how this might be associated with that person’s functional abilities and any unintentional movements they may have. It is important for us to understand what, if any, sensory concerns people with cerebral palsy may have.
Community Registry Survey: Completed
Community Attitudes on a CP Diagnosis
Please consider taking this 10-15 minute anonymous research survey asking your views on what it means to carry a cerebral palsy diagnosis. Our goal is to share the information gathered from this survey with medical providers to optimize how they diagnose cerebral palsy and related disorders.
Community Registry Survey: Completed
Consequences of Falls
Better understanding the physiological and psychological consequences of falls is relevant to the cerebral palsy (CP) community and stakeholders because frequent trips and falls are common occurrences reported by patients and families. Learning what activities or conditions contribute to falls, how individuals fall, resulting injuries, and conscious behavior modifications due of falls can improve exercise recommendations and psychology referrals (e.g., for fall anxiety, activity avoidance), provide empirical numbers to enhance clinical awareness, and help us create tools and opportunities for safer community participation
Community Registry Survey: Completed
Speech and Language Predictors of Participation for Children with CP
The following survey is part of a research study aimed to better understand factors that contribute to social and communicative participation for children with cerebral palsy. The first 120 participants will receive a $20 gift card for Amazon within 30 days of completion of the study. [Note: Please do not take this survey a second time if you initially took it based on a CP Foundation Instagram post.]
Community Registry Survey: Completed
