MyCP
Join the Discussion
Join discussions with clinicians and community members discussing the best treatments for cerebral palsy.
Learn more...Exclusive Content
Access our award winning CP Toolkit, Wellbeing Guide and other content only available to members of MyCP.
Learn more...Participate in Research
Contribute your personal experience to our registry to advance research and knowledge of cerebral palsy.
Learn more...Personalization
Get recommendations from our extensive site content personalized to your cerebral palsy.
Learn more...Wellbeing Programs
Improve your overall wellbeing by learning to practice mindfulness, adaptive fitness, and good nutrition.
Learn more...Stay informed
Customize notifications of new content, study opportunities and findings, and events from our website.
Learn more...MyCP Community Registry Studies
By participating in the MyCP registry, community members may help researchers understand their experience of living with CP by completing research surveys. MyCP surveys are designed with the help of our community advisors working alongside CP researchers.
This project aims to collect person reported information from adults with cerebral palsy (CP) ages 18 to more than 100 years about functional changes and pain interference with aging. The goal is to enroll a large sample of adults with CP from the community in a registry with follow up.
The following series of questions will ask you about your pain, where it is, how bad it is, what makes it feel better and how it has impacted your life. We will also ask you about what treatments you have done, what worked, and if you use opioids.
The following series of questions will be asking you about how you move your arms and legs, if you use equipment to move, and if you are satisfied with your movement.
Medical History Background -- this form collects basic data that is useful for finding people eligible for future studies and characterizing the community members that participate in the registry.
This month’s MyCP Webinar
The Cerebral Palsy Research Network webinar series seeks to educate the community on its findings and directions in research. One webinar per month is presented to provide an update on its current research.
Our Health &
Wellbeing Programming
Thank you for facilitating the opportunity to join the MENTOR program…I’m much better equipped to maintain my health now, and push through what life throws my way with the newly acquired experience and knowledge.”
Nicole L – MENTOR participant
Part of the Cerebral Palsy Research Network’s mission is providing health and wellbeing programming to our community of individuals with cerebral palsy. Staying active and reducing stress are vital components of maintaining health and wellness throughout one’s life.
Establishing healthy habits in early childhood will help people with cerebral palsy to continue to maintain their sense of wellbeing into adult life, possibly preventing or reducing secondary complications to having cerebral palsy.
Sign up for alerts to receive a notification when we expand our health and wellbeing programs this year.
Pediatric Health/Wellbeing Programs
Stay tuned for more information!
Adult Health/Wellbeing Programs
We have partnered with the National Center for Health, Physical Activity and Disability (NCHPAD) to provide virtual classes on mindfulness, exercise and nutrition in the free MENTOR program. Classes start every month. Visit our MENTOR program page to learn more.
PO Box 8347
Greenville, SC 29604
info@cprn.org
Phone: 402.302.CPRN (2776)
EIN: 47-4901704
Donate today and help us change the lives of people with cerebral palsy and their families!
