The Cerebral Palsy Registry is the core data project of the Cerebral Palsy Research Network. The cerebral palsy registry is a database of patients that are enrolled from all the CP Research Network participating centers.
Our Latest Research Reveals Wide Variation in a Common Spasticity Surgery
/in Adults, Cerebral Palsy Registry, Children and Families, CPRN Studies, Latest, Research/by PaulThe Cerebral Palsy Research Network congratulates Dr. Brandon Rocque of Children’s Alabama and the University of Alabama at Birmingham, along with many others* from the network’s surgical spasticity study group and all contributing sites on the publication of a landmark new study, “Selective Dorsal Rhizotomy for the Management of Spasticity in Children with Cerebral Palsy:…
Our NICU Registry – Progress for Hypoxic Ischemic Encephalopathy
/in Cerebral Palsy Registry, Children and Families, CPRN Studies, Latest, Research/by PaulJoin us next Thursday, April 9th at 8 pm ET to learn about important progress for our cerebral palsy registry. About 18 months ago, we shared an exciting idea with the community: what if we could extend our registry so that it tracks babies born with hypoxic ischemic encephalopathy (HIE) — from their very first…
Your Voice, Our Future: Guide the CP Research Network’s Next Five Years
/in Adults, Cerebral Palsy Registry, Children and Families, CPRN Studies, Education, Latest, Quality Improvement, Research, Wellbeing/by PaulWe invite you to help us guide the next set of strategic activities for the CP Research Network during our next MyCP webinar. On Wednesday, August 27 at 8:00 PM ET, we’re hosting a one-hour virtual community gathering to brainstorm ideas to shape the direction of our work for 2026–2030. Your feedback and insight helped…
Unlocking Answers: Why Genetic Testing Matters for Children with Cerebral Palsy
/in Cerebral Palsy Registry, Latest, News, Research/by PaulAt the CP Research Network, we are proud to be a part of a powerful new initiative — Start Genetic — a national movement raising awareness of the critical role of genetic testing in diagnosing children with unexplained health conditions, including cerebral palsy (CP). A Shift in Understanding CP For decades, cerebral palsy was largely…
Webinar: Understanding Chronic Lower Back Pain in Adults with Cerebral Palsy
/in Adults, Cerebral Palsy Registry, CPRN Studies, Latest, News, Research/by Joyce TrostNext Thursday, June 12 at 8 pm ET the MyCP Webinar will feature Julie Stutzbach, PT, PhD and Mary Gannotti, PT, PhD speaking about new research on chronic lower back pain in adults with CP and strategies to improve care through shared understanding of the nature of pain, communication about pain, and advocacy for treatment….
Cerebral Palsy Registry Sheds Light on Rhizotomy Surgeries
/in Cerebral Palsy Registry, CPRN Studies, Latest, Research/by PaulThe Cerebral Palsy Research Network’s March MyCP Webinar will focus on practice variation in rhizotomy – a neurosurgical procedure to reduce challenges caused by spasticity – next Wednesday, March 19 at 8 pm ET. Dr. Brandon Rocque, a pediatric neurosurgeon at Children’s of Alabama, will present the findings from more than 500 rhizotomy surgeries that…
Charting the Future of Adult Cerebral Palsy Care: Priorities for Multicenter Research
/in Adults, Cerebral Palsy Registry, CPRN Studies, Latest, Research CP/by Joyce TrostThe Cerebral Palsy Research Network is pleased to announce a new milestone publication that establishes critical areas of need for adult health in people with cerebral palsy (CP). These specific areas include bone health, kidney health and preventive care, and the study proposes an agenda for investigating future interventions for adults with CP….
Ethics of Artificial Intelligence and Cerebral Palsy Research
/in Adults, Cerebral Palsy Registry, Children and Families, CPRN Studies, News, Research/by PaulNext Monday, February 24, at 8 pm the Cerebral Palsy Research Network will host a town hall on the ethics of using artificial intelligence (AI) to make new discoveries and predictions in cerebral palsy. We will also be gathering your thoughts about the use of AI in medicine, the ownership of data, and informed consent…
Seeds Sown Began to Blossom in 2024
/in Adults, Cerebral Palsy Registry, Children and Families, CPRN Studies, Education, Latest, Research/by PaulThis past year saw incredible growth across the network as the seeds sown in prior years began to blossom. Our community priorities in research established in years past have led to new information and understanding as well as new screening protocols in the areas of adult pain, functional decline and dystonia. We established the need…
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