Our Educational Resources

CP Tool Kit

Access our comprehensive and supportive resource for families and caregivers who have recently received a cerebral palsy diagnosis.

Wellbeing Guide

Access our supportive resource for parents and caregivers who are raising a child, adolescent or young adult with CP or another disability.

Join a community of people with cerebral palsy who are committed to improving outcomes through research!

Our Research &
Active Studies

This section offers a sample of our current research efforts. Some of these studies are surveys that are available by participating in our MyCP Community Registry. Other studies are being conducted using our research network of participating hospitals and clinics.
The following series of questions will ask about things such as how long you went to school, how you move around and communicate and the status of your health. We will also ask about the way you feel, if you have pain, and if you had surgery as a child. We are particularly interested in your viewpoint on whether you think people have treated you differently as a result of having cerebral palsy.
The genetics of cerebral palsy study is funded by the National Institutes of Health with the intention of performing genomic analysis of 500 trios, the person with CP and their biological parents, to identify new genes that cause CP. Participants need to be patients of one of the participating centers and provide saliva samples through "spit kits" sent in the mail.

Our Health &
Wellbeing Programming

Thank you for facilitating the opportunity to join the MENTOR program…I’m much better equipped to maintain my health now, and push through what life throws my way with the newly acquired experience and knowledge.
Nicole L
MENTOR participant

Part of the Cerebral Palsy Research Network’s mission is providing health and wellbeing programming to our community of individuals with cerebral palsy. Staying active and reducing stress are vital components of maintaining health and wellness throughout one’s life.

Establishing healthy habits in early childhood will help people with cerebral palsy to continue to maintain their sense of wellbeing into adult life, possibly preventing or reducing secondary complications to having cerebral palsy.

Sign up for alerts to receive a notification when we expand our health and wellbeing programs this year.

Pediatric Health/Wellbeing Programs

Stay tuned for more information!

Adult Health/Wellbeing Programs

Beginning Tuesday, June 8th, we will be sponsoring free adaptive fitness classes for teen and adult members of our MyCP community in partnership with Staying Driven, LLC. Find out more information and how you can participate by visiting our MyCP fitness page!

We have also partnered with the National Center for Health, Physical Activity and Disability (NCHPAD) to provide virtual classes on mindfulness, exercise and nutrition. We are planning to build on the 10-person pilot that concluded in May 2021.

Blogs

Latest News Research Education CP Stories CP Daily Living
October 6 is World CP Day - Millioins of Reasons to Spread the Word
Dr. Wade Shrader of Nemours/AI duPoint, smiling in a blue suit, will present on the importance of hip surveillance
A scene from Hawaii with two palm trees standing in a lush green field with the ocean and a perfect rainbow behind them
St. Louis Children's Hospital, flanked by two women, pediatric neurologists, who lead the CP Center and participation in CPRN
The footer from the CP Research Network website set on a dark green, with a pink button so you can change your notifications.
Heather Hancock, pictured with long brown hair and red shirt, wire rimmed glasses with a book case behind her is an editor
October 6 is World CP Day - Millioins of Reasons to Spread the Word
St. Louis Children's Hospital, flanked by two women, pediatric neurologists, who lead the CP Center and participation in CPRN
New CPRN Website
October 6 is World CP Day - Millioins of Reasons to Spread the Word
Dr. Wade Shrader of Nemours/AI duPoint, smiling in a blue suit, will present on the importance of hip surveillance
A scene from Hawaii with two palm trees standing in a lush green field with the ocean and a perfect rainbow behind them
The footer from the CP Research Network website set on a dark green, with a pink button so you can change your notifications.
Heather Hancock, pictured with long brown hair and red shirt, wire rimmed glasses with a book case behind her is an editor
Marquis Lane, a young African American man, seated wearing a navy Georgia sweatshirt with four friends behind him at a stadium
The UP Academy Team
The Shrader children -- triplets to the right with sister Cate on the left.
Dr. Unni Narayanan, orthopedic surgeon
Mason Shrader on an archeological dig in Spain
Marquis Lane, a young African American man, seated wearing a navy Georgia sweatshirt with four friends behind him at a stadium
“Traveling with a wheelchair” on a bright green banner with a pic of a wheelchair aside a plane by the ramp to enter the plane
The UP Academy Team
The Shrader children -- triplets to the right with sister Cate on the left.
Mason Shrader on an archeological dig in Spain
Dr. Kristen Allison
Disclaimer:

The Cerebral Palsy Research Network is strictly an education and information website about cerebral palsy and its related conditions. We are not providing or intending to provide medical advice, diagnosis or treatment for you or your loved one. The content here is not intended to be a substitute for seeking or implementing professional medical advice, diagnosis, or treatment. Always reach out to your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website or websites we link to.