Study Groups

The Cerebral Palsy Research Network is organized into study groups. Study groups are organized around a population (adults), methodologies (quality improvement) or specific studies (PCORI application) to facilitate small group collaborations. Study groups use the CPRN clinical registry or the CPRN Patient Reported Outcomes registry to conduct pilot studies or surveys that are then used to form concepts for additional studies. The current active study groups include:

  • Clinical Registry, Principal Investigator, Garey Noritz, M.D.
  • Adult Registry, Co-Principal Investigators Mary Gannotti, Ph.D. and Debbie Thorpe, Ph.D.
  • Patient Reported Outcomes Registry, Co-Principal Investigators, Paul Gross and Jacob Kean, Ph.D.
  • Quality Improvement, Amy Bailes, Ph.D.