Research presents cerebral palsy research updates, funding and funding opportunities, as well as new publications and the information offered within them, to keep the cerebral palsy community informed. Learn how you can be a part of the conversations by joining MyCP, an interactive cerebral palsy community forum, today!
What should high-quality cerebral palsy (CP) care look like, and how can healthcare programs ensure they are meeting the needs of people with CP and their families throughout life? A new study conducted through the Cerebral Palsy Research Network sought to answer these questions by examining 11 leading CP programs across North America. Researchers explored…
On Tuesday, May 26, at 8 pm ET, the Cerebral Palsy Research Network will host a live MyCP community webinar about chronic pain in adults with CP. Pain is one of the most common and frustrating issues people with cerebral palsy report. It impacts the entire population from pediatrics through adulthood. There are different types…
The Cerebral Palsy Research Network investigators*, led by Drs. Amy Bailes and Mary Gannotti, have a newly published article about our efforts to improve pain assessment in adults with CP during their healthcare visits. The title of the article: First steps toward pain classification among adults with cerebral palsy: A modified Delphi Study was published…
If you are an adult living with cerebral palsy or a parent raising a child with CP, or a caregiver—this post is for you. Your voice doesn’t just belong in research. It belongs at the center of it. This week, the American Brain Coalition (ABC) launched its new Community Engagement Platform—a flexible training resource for…
The Cerebral Palsy Research Network congratulates Dr. Brandon Rocque of Children’s Alabama and the University of Alabama at Birmingham, along with many others* from the network’s surgical spasticity study group and all contributing sites on the publication of a landmark new study, “Selective Dorsal Rhizotomy for the Management of Spasticity in Children with Cerebral Palsy:…
Join us next Thursday, April 9th at 8 pm ET to learn about important progress for our cerebral palsy registry. About 18 months ago, we shared an exciting idea with the community: what if we could extend our registry so that it tracks babies born with hypoxic ischemic encephalopathy (HIE) — from their very first…
March is Cerebral Palsy (CP) Awareness Month in the United States and we want you to share your story. Awareness of CP is vitally important to get our society to recognize the physical and social challenges, medical costs and needs of people living with CP. Awareness helps us advance research, educate doctors, nurses, school systems,…
The Cerebral Palsy Research Network is launching a new six-part “Genetic Causes of CP” webinar series for families and adults with CP and physicians that will run every other month throughout 2026. The first webinar will take place on Wednesday, February 25, at 8 PM ET and is sponsored by GeneDx — a leader in…
Next Thursday, February 19, at 8 pm ET, the Cerebral Palsy Research Network will share its findings from the recently concluded adult healthcare satisfaction study. In trying to solve the problem of how to connect adults with CP to expert CP medical care, the CP Research Network set out to understand how adults with CP…
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