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Learning to let go

  Last week at our neighborhood’s annual Halloween party, I thought about how much Lillian Maya has changed over the last ten years that we have lived here. During our first five years in this neighborhood, we skipped trick-or-treating because it was too overwhelming for her. She did, however, always want to go to the…

Motivating your child with CP

Recently a grandparent of an 8-year old boy with CP asked me for ideas about how to help motivate her grandson. She said he is a happy child, but she is concerned that he is becoming a master at getting people to do things for him rather than working on developing skills himself. She believes…

A Young Lady in the Making

  Maya’s therapist said to me that she feels Maya is finally getting used to coordinating her more grown up body. She has been changing so quickly over the last 9 months and it’s been very hard for her to keep up physically and emotionally. Even though it was hard for her, she had become…

Setting a consumer-centered research agenda for CP-Mission accomplished!

  Last summer, CP NOW and the *Cerebral Palsy Research Network (CPRN) hosted Research CP, a comprehensive program designed to develop a *consumer centered research agenda for the CP community. Because of this groundbreaking conference, the CP community has a prioritized list of research topics that are meaningful to individuals with CP and representative of what people…