This month’s webinar turns the table on our usual “clinician scientist’s report on their study results” and focuses instead on how you can contribute to science as a member of the community or as a clinician. Cerebral Palsy Research Network Chief Executive Officer, Paul Gross, will demonstrate the range of capabilities of and benefits from engaging in research through MyCP. MyCP is a personalized, secure web platform for collaboration and contribution to research about the lived experience of having CP or caring for someone with CP. The webinar is scheduled for Wednesday, March 29, at 8 pm ET via Zoom.
The primary way that MyCP allows community members to participate in research is through surveys hosted in a well-established academic research survey platform called REDCap. Before community members can access surveys, we go through an informed consent process. We will discuss the key areas of consent and the privacy and security of data to enable your participation in research. Members of the research community will benefit from learning about how consumers participate in our research environment and how community members are informed of available studies.
MyCP includes personalized web resources, access to our award winning toolkit and other resources, and a private discussion forum. The discussion forum provides a private and optionally anonymous platform for community members to interact with the physicians in our network to discuss research priorities, evidence-based treatments and to share important lived experiences. The webinar will review how community members and clinicians can connect to improve outcomes for people with CP.
Please register and join us for this presentation and discussion so you can learn how MyCP can help you contribute to the conversation and the action to optimize the lifelong health and wellbeing of people with CP. The webinar will also be recorded and posted to our website and YouTube.