Entries by Paul

St. Louis Children’s Hospital Joins Our Network

The Cerebral Palsy Research Network is happy to announce that St. Louis Children’s Hospital and Washington University in St. Louis have joined our network. Toni Pearson, MD, Medical Director of the Cerebral Palsy Center at St. Louis Children’s Hospital and her colleague Bhooma Aravamuthan, MD, DPhil, will lead both institutions in the participation in network…

Personalize Your Cerebral Palsy News

We have added a simple way for you to personalize your cerebral palsy news from cprn.org. We post information – educational information, research news, CP daily living experiences and community “CP stories” several times a month on our website. There are three ways to get these updates from cprn.org: Any time you may visit our…

Dystonia Agenda Takes Center Stage at Child Neurology Society Meeting

Dr. Laura Gilbert, a pediatric neurologist at St. Louis Children’s Hospital, has been selected to present our Dystonia in Cerebral Palsy patient-centered research agenda at the Child Neurology Society (CNS) meeting in Boston, MA in September 2021. Her talk, entitled, “Top 10 Areas of Research Need for People with Cerebral Palsy and Dystonia: A Novel…

Join our Webinar on Adult Wellbeing and Pain in Cerebral Palsy

How does your lived experience align with the initial results from our chronic pain study? Compiling information about the chronic pain and wellbeing challenges many adults with cerebral palsy experience, sometimes on a daily basis, is an important priority for the Cerebral Palsy Research Network as we work to improve health outcomes for our community….

CPRN’s progress as a Learning Health Network is published!

The Cerebral Palsy Research Network’s progress as a Learning Health Network (LHN) has been published in the Journal for Pediatric Rehabilitation Medicine this past week. Primary author Amy Bailes, PT, PhD, published a self-assessment from leaders in the Cerebral Palsy Research Network using a tool developed by Cincinnati Children’s Hospital called the Network Maturity Grid…

A step forward in Standardizing Patient Reported Outcomes

Hospitals and clinicians in the Cerebral Palsy Research Network will be able to track, learn from, and compare outcomes for their patient populations thanks to our selection of standardized patient outcome measures. The CP Research Network has collaborated with Dr. Unni Narayanan, the subject of our recent CP Stories series, at the Hospital for Sick…