Entries by Paul

Make a Difference: Join Our STEPtember Fundraising Team

We invite you to join us to make a difference in cerebral palsy (CP) by helping to raise funds for CP research through STEPtember. STEPtember is an activity-based peer-to-peer fundraiser that happens throughout the month of September. Donations support us through our strategic partnership with Cerebral Palsy Alliance Research Foundation (CPARF) as they are the…

Webinar: Adults with Cerebral Palsy and Low Back Pain

The Cerebral Palsy Research Network has initiated a new study to examine the effects of low back pain on quality of life for adults with cerebral palsy (CP). Julie Stutzbach, PT, DPT, PhD, (link) a clinician scientist with extensive experience in neurorehabilitation, clinical trials and qualitative research will present her new study concept to members…

Accelerating our mission with new board members

The Cerebral Palsy Research Network is all about bringing together people from across the patient, family, medical and research communities to create connections that lead to shared understanding and improved wellbeing for people with CP. It’s why “network” is in our name. As a network, people are at the heart of what we do, and…

Inside the CP Research Network Annual meeting

Earlier this month, the Cerebral Palsy Research Network held its annual investigators’ meeting in Wilmington, Delaware. It was graciously hosted by AI duPont/Nemours Children’s Hospital. This annual face-to-face meeting is critical to advancing our Research CP agenda, connecting investigators with community members and funders, and re-energizing our research community to answer the questions that our…

Selective Dorsal Rhizotomy in the Real World

The Cerebral Palsy Research Network’s MyCP webinar for April will feature Jeffrey Leonard, MD, Chief of Neurosurgery at Nationwide Children’s Hospital, talking about selective dorsal rhizotomy (SDR) – a surgical procedure to reduce spasticity for people with cerebral palsy (CP). Dr. Leonard, neurosurgery lead for the CP Research Network, will discuss the “who, what, how,…

Winners! Cerebral Palsy Awareness Day 2023

Today, March 25, is the federally recognized Cerebral Palsy (CP) Awareness Day! We are excited to announce the winners for our inaugural CP Awareness Month photo contest. In February, we began accepting submissions in three categories that we thought were important to represent our community: kids, teen & young adults, and adults over 25. Each…

Webinar: Making a Difference with MyCP

This month’s webinar turns the table on our usual “clinician scientist’s report on their study results” and focuses instead on how you can contribute to science as a member of the community or as a clinician.  Cerebral Palsy Research Network Chief Executive Officer, Paul Gross, will demonstrate the range of capabilities of and benefits from…

CP Research Network Advances

Recent Publications A multicenter initiative to reduce intrathecal baclofen pump surgical site infection: a Cerebral Palsy Research Network quality improvement project” by Robert Bollo, MD, a pediatric neurosurgeon at Primary Children’s Hospital in Salt Lake City, Utah. This publication details the use of quality improvement methodologies to reduce one of the most serious complications of…