Earlier this month, the Cerebral Palsy Research Network held its annual investigators’ meeting in Wilmington, Delaware. It was graciously hosted by AI duPont/Nemours Children’s Hospital. This annual face-to-face meeting is critical to advancing our Research CP agenda, connecting investigators with community members and funders, and re-energizing our research community to answer the questions that our…
The Cerebral Palsy Research Network’s MyCP webinar for April will feature Jeffrey Leonard, MD, Chief of Neurosurgery at Nationwide Children’s Hospital, talking about selective dorsal rhizotomy (SDR) – a surgical procedure to reduce spasticity for people with cerebral palsy (CP). Dr. Leonard, neurosurgery lead for the CP Research Network, will discuss the “who, what, how,…
Today, March 25, is the federally recognized Cerebral Palsy (CP) Awareness Day! We are excited to announce the winners for our inaugural CP Awareness Month photo contest. In February, we began accepting submissions in three categories that we thought were important to represent our community: kids, teen & young adults, and adults over 25. Each…
This month’s webinar turns the table on our usual “clinician scientist’s report on their study results” and focuses instead on how you can contribute to science as a member of the community or as a clinician. Cerebral Palsy Research Network Chief Executive Officer, Paul Gross, will demonstrate the range of capabilities of and benefits from…
Recent Publications A multicenter initiative to reduce intrathecal baclofen pump surgical site infection: a Cerebral Palsy Research Network quality improvement project” by Robert Bollo, MD, a pediatric neurosurgeon at Primary Children’s Hospital in Salt Lake City, Utah. This publication details the use of quality improvement methodologies to reduce one of the most serious complications of…
The Cerebral Palsy Research Network will present our Adult Care Initiative at the next meeting of the American Academy for Cerebral Palsy and Developmental Medicine’s (AACPDM) Adults and Aging Special Interest Group (SIG) on Tuesday, February 28 from 4 pm ET until 5:30 pm. The presentation is open to the public and we encourage adults…
The Cerebral Palsy Research Network will continue it MyCP Webinar Series next Tuesday, February 21, at 8 pm ET with a presentation of the findings of its Sensory Study that was conducted with our Community Registry last summer. Principal investigators, Bhooma Aravamuthan, MD, DPhil and Danielle Barber, MD, PhD, will co-present the results of their…
In advance of Cerebral Palsy Awareness Month, which runs each year throughout the month of March, the Cerebral Palsy Research Network is introducing the second annual Cerebral Palsy Awareness Photo Contest to highlight the lives and experiences of community members living with CP. The contest invites members of the community to submit up to five photos photos that depict their day-to-day life,…
The Cerebral Palsy Research Network announced a strategic partnership with the CP Alliance Research Foundation (CPARF) to accelerate research, improve outcomes and expand educational efforts for the CP community. The CP Research Network will collaborate with CPARF to raise funds for CP research and CPARF will support the existing research efforts underway within the network….
The year 2022 was stellar for the Cerebral Palsy Research Network on several fronts — the creation of numerous new studies and funding to support existing studies, such as one focused on adult wellbeing and pain. We have had invaluable engagement with the community through our 11 webinars and our in-person research meeting in May….
