On Monday, June 21, at 8 pm ET, we invite you to tune in for our next MyCP Webinar, to discover why the Cerebral Palsy Research Network is working to become a learning health network and how doing so will enhance our efforts to improve health outcomes. The webinar will be presented by Amy Bailes…
In the third installment of her inspiring story, CP and triplet mom Carol Shrader shares how she watched her son Benjamin, who has spastic quadriplegia, flourish during his college years… The night before my son Benjamin began his freshman year, I could not sleep. I worried all night long. “I know, right?” my husband Wade…
[In the second installment of her moving three-part story, triplet and CP mom Carol Shrader describes her son Mason’s experience of finding independence as he left home for college for the very first time.] When you’re a mama bear who has raised four children with very different needs, it’s instinctive to be a helicopter parent….
We are excited to announce a new wellbeing program in partnership with Staying Driven and Steph “the Hammer” Roach! Beginning Tuesday, June 8th at 7 pm ET, Staying Driven coaches will offer virtual adaptive fitness classes exclusively to registered MyCP community members! Staying Driven is a virtual adaptive fitness program founded by Stephanie “the Hammer”…
The Cerebral Palsy Research Network will launch its new website – combining all four of its web properties – this Monday, May 24! Our extended community will benefit from this single rich repository of information, resources, research and collaborative tools. In order to learn how to maximize the benefits of our new site, it will…
Forty-five clinicians from 28 academic medical centers came together on Zoom last month for the Cerebral Palsy Research Network’s fourth annual investigator conference. The two-day online gathering featured keynote speaker Marc Randolph, the co-founder and first CEO of Netflix, who shared pearls of wisdom on decision-making and growth to our diverse audience of research leaders. Participants,…
Three researchers from the Cerebral Palsy (CP) Research Network will present scientific findings at this year’s American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) annual meeting. Kristen Allison, Ph.D., a speech pathologist and researcher at Northeastern University, will present “Speech and Language Predictors of Participation in Children with CP,” research made possible through the CP…
Next Tuesday, April 20, at 8 pm ET, the Cerebral Palsy Research Network will be hosting a MyCP webinar about how innovative technology is advancing CP research. Dr. Jacob Kean, Associate Professor in Health System Innovation and Research at the University of Utah, will be presenting how we can transform healthcare for CP by harnessing information from your lived experiences. Dr. Kean will explain how our partnership with Datavant is opening doors to breakthroughs from community participation in MyCP, receiving care at a CP Research Network Center, or by participating in our research. Datavant allows us to connect many…
Thanks to our merger with CP NOW and new research studies already off the ground, it’s been an exciting year so far for the CP Research Network. So, what’s next? Our new website! Since our January merger, our team has been busy integrating four websites into one to create a new online home – cprn.org…
“Ethan knows he’s different and he’s really happy and content.” Toddler Ethan Lopez was diagnosed with spastic quadriplegia cerebral palsy (CP) and dystonia at the age of two. Today, his mother Brittany, 31, shares her joy at seeing her son take everything in his stride… Just like many parents with a young child, Brittany Lopez,…
