Cerebral Palsy Research Network Blog

Patient Advocate Michele Shusterman to Join CPRN Leadership Team

Mrs. Michele Shusterman

Mrs. Michele Shusterman

Michele Shusterman, founder of CP Daily Living, has recently joined the leadership team of the Cerebral Palsy Research Network (CPRN) to coordinate patient and parent input into the CPRN research agenda. She is the mother of a child with cerebral palsy and a tireless advocate for improved support, education and research for cerebral palsy.

Mrs. Shusterman is a Co-PI on the recently submitted PCORI application “Enhancing Surgical Decision Making for Families of Children with Cerebral Palsy” where she co-leads the patient stakeholder partners committee. Her opinion piece, “Introducing the term ‘early developmental brain injury/interference’ and a new framework for discussing cerebral palsy,” was published in the February 2015 issue of Developmental Medicine and Child Neurology.1 It has generated ongoing dialogue among professionals and families about how to best promote proactive and timely support for people with CP.

1Shusterman, M. (2015), Introducing the term ‘early developmental brain injury/interference’ and a new framework for discussing cerebral palsy. Developmental Medicine & Child Neurology, 57: 110–111. doi: 10.1111/dmcn.12642
An earlier version of this article appeared on the CP Daily Living website