More than 200 from the CP community tuned into our first ever webinar – both live and recorded – this week to get an overview about the Research CP initiative. This response is fantastic and demonstrates the need to share ideas and be engaged. The webinar was the first in a series of five. Research CP is a a collaboration between CPRN and CP NOW to educate and engage the community to set a patient-centered CP research agenda for better treatments and improved outcomes. The audience was comprised of adults with CP, parents/caregivers of children with CP as well as medical professionals who treat those with CP.
Paul Gross and Dr. Ed Hurvitz presented the overview of the program that includes the webinar series, a collaborative survey, an application to attend a workshop in June, the Eugene Washington PCORI funded workshop on June 16-17, 2017 in Chicago, IL and a white paper that will be the culmination of all of the learning from the webinars, surveys and workshop. Please note that applications can be submitted to attend the workshop after viewing the first webinar. If you haven’t yet, there is still time to register for our webinar series!
The audience was very engaged in the Q and A session with more questions being asked and answered than time permitted. Stay tuned. If you missed the webinar, you can go here to watch the recorded version now. Everyone who is interested is invited to watch the webinar series and the workshop in June will be be available virtually through live streaming. Many thanks to all of those who helped to make the webinar worthwhile and successful. To those who attended – thank you – and a special thank you to Dr. Ed Hurvitz and Paul Gross for presenting and Michele Shusterman of CP NOW, the organization that received the award for the upcoming workshop.
Mark your calendar for our second webinar on Wednesday, March 15, 2017 at 8 pm ET. We are pleased to have Susan D. Horn, Ph.D, adjunct professor University of Utah School of Medicine, share her insights on different methodologies for clinical research and comparative effectiveness studies.