Entries by Editor MyCP

CP Stories: Researcher and PT Kristie Bjornson

“Physical Therapists need to know the tools to use to help children with CP” — Kristie Bjornson, PT, PhD Family ties and adversity sent physical therapist and well-established researcher Kristie Bjornson on her path to improving strength training for children with cerebral palsy. Kristie Bjornson was in middle school when her older brother Keith endured…

Neurologic Care for Adults with CP

Most people living with cerebral palsy today are adults, yet there is a disconnect about how childhood neurological care should transition into adulthood. Today, Dr. Bhooma Aravamuthan, MD, DPhil, shares her efforts to bridge that gap… As a pediatric neurologist, the bulk of my practice is caring for children with cerebral palsy, yet I did…

CP Stories: “I want Hudson to pursue all his dreams.”

Hudson Birkin was diagnosed with cerebral palsy at the age of four. Today his mother, Suzanne, 51, talks about her fight to advocate for the care her son needs…   When it comes to raising her eight-year-old son with cerebral palsy, devoted mother, Suzanne Birkin finds it best to take one day at a time.   “It’s hard to think way into the future for Hudson,” says Suzanne, who…

The importance of facilitating empathic and meaningful clinical encounters

Dr. Verónica Schiariti, a developmental pediatrician at the University of Victoria, in Canada, led the development of the International Classification of Functioning, Disability and Health (ICF) guidelines for children and youth with cerebral palsy (CP). In a guest blog for the CP Research Network, she examines why ICF is so important for our community… What…

CP Stories: Dr. Garey Noritz

As the new chair of the AAP’s Council on Children with Disabilities, Dr. Garey Noritz has the cerebral palsy community in mind. A long-time supporter of the CP Research Network, Dr. Garey Noritz understands how vital the American Academy of Pediatrics’ commitment to helping children with disabilities is for the cerebral palsy community. Now, in…

CPRN Seeks to Study Improvements from Spasticity Interventions

The Cerebral Palsy Research Network (CPRN) submitted a significant multi-center grant application to the National Institute of Neurological Disorders and Stroke (NINDS), one of the National Institutes of Health (NIH), last month.  Functional Improvement Related from Spasticity Treatments (FIRST) has been in the planning stages for several years and exemplifies the type of study that…

NIH Forum features CPRN’s Registry

The Cerebral Palsy Research Network (CPRN) chairman and founder, Paul Gross, moderated a panel of experts entitled “Big Data: How to Address Custom Needs” this past week at the National Institutes of Health (NIH).  The National Institute of Neurological Disorders and Stroke (NINDS), the largest funder of science of the brain and nervous system, held…

A.I. duPont Hosts CPRN for CP Grand Rounds

Cerebral Palsy Research Network (CPRN) Chairman and Founder, Paul Gross, kicked off the inaugural CP Grand Rounds on November 1, 2018 at Nemours/Alfred I. duPont Hospital in Wilmington, Delaware. Gross was invited by M. Wade Shrader, M.D. newly appointed Chief of the Division of Cerebral Palsy and the Freeman Miller Endowed Chair of CP, who…

CPRN Expands Awareness at AACPDM

The Cerebral Palsy Research Network (CPRN) expanded awareness of its efforts during the recent annual meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) in Ohio. The formal presentations included: an hour long breakfast seminar on Research CP – our patient-centered research agenda – presented by Michele Shusterman, Paul Gross, Amy Bailes,…

CPRN Founder Receives University of Utah Faculty Appointment

The Cerebral Palsy Research Network (CPRN) Founder and Chairman, Paul Gross, has been appointed to the faculty of the University of Utah’s (U of U) Health Services Innovation and Research (HSIR) Division of the Department of Population Health Sciences within the U of U School of Medicine. His appointment is as an Adjunct Assistant Professor….