Benchmarking models of care delivery within Cerebral Palsy Research Network sites Developmental Medicine & Child Neurology, July 31, 2026 Laurie Glader, Paul H. Gross, Models of Care Working Group, Nina Miller, Michael C. Kruer Abstract…

First steps toward pain classification among adults with cerebral palsy: A modified Delphi study Disability and Health Journal, May 5, 2026 Mary E. Gannotti, David J. Kohns, Garey H. Noritz, Duncan O. Wyeth, Elizabeth J. Lucas, Elisabeth B. Bates, Hana Azizi, Cristina A. Sarmiento, Deborah E. Thorpe, Stephen A. Nichols, Jodi M. Kreschmer, Susan L. Koller, Lee Y. Schuh, Elizabeth R. Boyer, Mary M. Schmidt, Linda E. Krach, Karen Pleasant, Eric M. Chin, Edward A. Hurvitz, Amy F. Bailes Abstract…

Variability in selective dorsal rhizotomy surgery: an analysis of the Cerebral Palsy Research Network registry Journal of Neurosurgery, April 3, 2026 Brandon G. Rocque, MD, MS, H. Caroline Davies, MS, Jeffrey S. Raskin, MD, MS, Jeffrey R. Leonard, MD, Virendra R. Desai, MD, Robert J. Bollo, MD, MS, Joyce Oleszek, MD, C. Corbett Wilkinson, MD, Sophia R. Blasco, BA, Charles B. Stevenson, MD, Patrick G. McPhee, PhD, Neena I. Marupudi, MD, MS, Joyce P. Trost, PT, PhD, and Paul Gross, BA Abstract…

Weight measurements and disease-specific growth charts to predict clinical outcomes in children with cerebral palsy Developmental Medicine & Child Neurology, February 28, 2026 Judy-April O. Murayi, Laurie J. Glader, Richard D. Stevenson, Carson J. Richardson, Praveen S. Goday Abstract…

Multi-center improvement in screening for pain that affects activities in adults with cerebral palsy Disability and Health Journal, September 10, 2025 Amy F. Bailes, Garey H. Noritz, Duncan O. Wyeth, Elizabeth J. Lucas, Elisabeth B. Bates, Hana Azizi, Cristina A. Sarmiento, Deborah E. Thorpe, Stephen A. Nichols, Jodi Kreschmer, Stephen Wisniewski, Mary Gannotti Abstract…

Fall experiences of ambulatory children and adults with cerebral palsy: A qualitative study using thematic content analysis DMCN, August 21, 2025 Marissa Esterley, Linda E. Krach, Kari Pederson, Sandy Callen Tierney, Nathan G. Wandersee, Elizabeth R. Boyer Abstract…

Development and validation of a stakeholder-driven, self-contained electronic informed consent platform for trio-based genomic research studies AJOB Empirical Bioethics, June 23, 2025 Norton, Bethany Y, et al. Abstract…

Chronic lower back pain in adults with cerebral palsy: Stigma, anxiety, and physical decline DMCN, May 13, 2025 Julie A. Stutzbach, Cristina A. Sarmiento, Tanya S. Kenkre, Joyce L. Oleszek, Stephen R. Wisniewski, Mary Gannotti, for the Cerebral Palsy Research Network Abstract…

Multi-center improvement in screening for dystonia in young people with cerebral palsy Neurology Clinical Practice, April 17, 2025 Bhooma R Aravamuthan, Emma Lott, Esra Pehlivan, Keerthana Chintalapati, Deborah Grenard, Desiree Roge, Rose Gelineau-Morel, Dante Kyle, Christie Becu, Michael Kruer, Linn Katus, Paul Gross, Amy Bailes; Cerebral Palsy Research Network Abstract…

Stakeholder perspectives on an adult cerebral palsy community registry: a qualitative study. Disability and Health Journal, March 8, 2025 Cristina A. Sarmiento, Edward A. Hurvitz, Jocelyn Cohen, Mary E. Gannotti Abstract…

Priority setting for multicenter research among adults with cerebral palsy: a qualitative study Disability and Rehabilitation, February 3, 2025 Cristina A. Sarmiento, Mary E. Gannotti, Jocelyn Cohen, Edward A. Hurvitz Abstract…

Physical and Psychosocial Consequences of Falls in Ambulatory Individuals With Cerebral Palsy by Age and Gross Motor Function Archives of Physical Medicine and Rehabilitation, December 16, 2024 Marissa Esterley, Linda E. Krach, Kari Pederson, Nathan G. Wandersee, Sandy Callen Tierney, Elizabeth R. Boyer Abstract…

Physician Approaches to the Pharmacologic Treatment of Dystonia in Cerebral Palsy Pediatrics, June 5, 2024 Emma Lott, Darcy Fehlings, Rose Gelineau-Morel, Michael Kruer, Jonathan W. Mink, Sruthi P. Thomas, Steve Wisniewski, Bhooma Aravamuthan Abstract…

Cerebral Palsy Research Network Community Registry Adult Surveys on Function & Pain: Successes, Challenges, and Future Directions Disability and Health Journal, May 29, 2024 Mary E. Gannotti, Paul H. Gross, Deborah E. Thorpe, Edward A Hurvitz, Garey H. Noritz, Susan D. Horn, Michael E. Msall, Henry G. Chambers, Linda E. Krach, Cristina A. Sarmiento Abstract…

Sensory symptoms across the lifespan in people with cerebral palsy Pediatric Neurology, April 26, 2024 Ariel M. Lyons-Warren, Danielle Guez-Barber, Sruthi P. Thomas, Evelyne K. Tantry, Aditya Mahat, Bhooma Aravamuthan, Abstract…

Adults with cerebral palsy and functional decline: A cross-sectional analysis of patient-reported outcomes from a novel North American registry Disability and Health Journal, February 29, 2024 Mary E. Gannotti, Christina A. Sarmiento, Paul H. Gross, Deborah E. Thorpe, Edward A. Hurvitz, Garey H. Noritz, Susan D. Horn, Michael E. Msall, Henry G. Chambers, Linda E. Krach Abstract…

Relation of Speech-Language Profile and Communication Modality to Participation of Children With Cerebral Palsy American Journal of Speech-Language Pathology, January 12, 2024 Kristen M. Allison and Kayla M. Doherty, for the Cerebral Palsy Research Network Abstract…

Adults with cerebral palsy and chronic pain experience: A cross-sectional analysis of patient-reported outcomes from a novel North American registry Disability and Health Journal, November 13, 2023 Cristina A. Sarmiento, Mary E. Gannotti, Paul H. Gross, Deborah E. Thorpe, Edward A. Hurvitz, Garey H. Noritz, Susan D. Horn, Michael E. Msall, Henry G. Chambers, Linda E. Krach Abstract…

A Mixed-Methods Study of Practice Variation in Selective Dorsal Rhizotomy: A Study by the Cerebral Palsy Research Network (CPRN) Pediatric Neurology, September 25, 2023 Ziyad Makoshi, Jeffrey Raskin, Robert Bollo, Brandon Rocque, Susan Zickmund, Patrick Galyean, Grace Perry, Samuel Browd, Paul Gross, Kristie Bjornson, and Jeffrey Leonard Abstract…

A multicenter initiative to reduce intrathecal baclofen pump surgical site infection: a Cerebral Palsy Research Network quality improvement project Journal of Neurosurgery: Pediatrics, February 24, 2023 Robert J. Bollo, Paul H. Gross, Brandon G. Rocque, Samuel R. Browd, Jeffrey S. Raskin, Jeffrey R. Leonard, Lama Albarqawi, Amy F. Bailes, Cerebral Palsy Research Network (CPRN) Abstract…

Epilepsy and proxy-reported health-related quality of life in children and young people with non-ambulatory cerebral palsy Developmental Medicine & Child Neurology, July 12, 2022 Adam P. Ostendorf, Erika T. Axeen, Krista Eschbach, Erin Fedak Romanowski, Lindsey A. Morgan, Paul Gross, Unni G. Narayanan, Laurie Glader, Garey Noritz, for the Cerebral Palsy Research Network Abstract…

Top 10 Research Themes for Dystonia in Cerebral Palsy: A Community-Driven Research Agenda Neurology, June 17, 2022 Laura A. Gilbert, Darcy L. Fehlings, Paul Gross, Michael C. Kruer, Wendy Kwan, Jonathan W. Mink, Michele Shusterman, Bhooma R. Aravamuthan, and the Cerebral Palsy Research Network Dystonia Study Group Abstract…

Hip surveillance for patients with cerebral palsy in the United States Journal of Pediatric Rehabilitation Medicine, March 29, 2022 M. Wade Shrader, Paul H. Gross, Amy F. Bailes, Amanda T. Whitaker Abstract…

Diagnostic preferences amongst cerebral palsy community members: a cerebral palsy diagnosis should be accompanied by description of its etiology Developmental Medicine and Child Neurology, January 29, 2022 Bhooma R. Aravamuthan MD DPhil, Michele Shusterman, LeeAnne Green Snyder PhD, Monica E. Lemmon MD, Jennifer M. Bain MD PhD, Paul Gross BA For the Simons Searchlight Foundation, For the Cerebral Palsy Research Network Abstract…

The cerebral palsy research network: Building a learning health network for cerebral palsy Journal of Pediatric Rehabilitation Medicine, June 25, 2021 Bailes, Amy F., Kean, Jacob, Gross, Paul H., Narayanan, Unni, Noritz, Garey, Hurvitz, Ed, Leonard, Jeffrey, Shusterman, Michele, Gannotti, Mary Abstract…

Cerebral Palsy Research Network Clinical Registry: Methodology and Baseline Report Archives of Rehabilitation Research and Clinical Translation, April 19, 2020 Paul Gross, Mary Gannotti, PT, PhD, Amy Bailes PT, PhD, Susan D. Horn PhD, Jacob Kean, PhD, Unni G. Narayanan MBBS, MSc, FRCS(C), JerryOakes MD, Garey Noritz, MD, for the Cerebral Palsy Research Network Abstract…

Registry-based Research in Cerebral Palsy: The Cerebral Palsy Research Network Physical Medicine and Rehabilitation Clinics of North America, November 7, 2019 Edward A.Hurvitz MD, Paul H.Gross, Mary E.Gannotti PT, PhD, Amy F.Bailes PT, PhD, Susan D.Horn PhD Abstract…

Research CP: Setting a patient-centered research agenda for cerebral palsy Developmental Medicine and Child Neurology, August 21, 2018 Gross, PH, Bailes, AF, Horn, SD, Hurvitz, EA, Kean, J, Shusterman, M Abstract…