The Cerebral Palsy Research Network (CPRN) has announced a new community education webinar series focused on its findings and directions in research for cerebral palsy (CP). One webinar per month will be presented by the principal investigator conducting the research and be followed by an open Q&A. Interested participants must sign-up. These webinars will not only provide the community with an excellent opportunity to learn about important new research projects but also to interact with the clinician researchers conducting these studies. Webinars will occur on weeknights at 8 pm ET.
The first webinar, scheduled for Wednesday March 25, is focused on the preliminary findings about adult health and wellbeing from the adult registry that was launched last year. It will be presented by Dr. Mary Gannotti, a professor from the University of Hartford and the co-chair of the CPRN adult study group, who has led the development of the study in conjunction with several clinicians who treat and study adults with CP in addition to help from the CPRN Adult Community Advisory Committee.
The webinars scheduled for the rest of the year include:
|April 23||Report from the CPRN Clinical Registry||Garey Noritz, MD|
|May||Cerebral Palsy and Epilepsy||Adam Ostendorf, MD|
|June||Practice Variation in Spasticity Management for Diplegics||Paul Gross|
|July||Functional Improved Related to Spasticity Treatments||Kristie Bjornson, PT, PhD|
|August||Practice Variation in Spasticity Management for Children who are not Ambulatory||Sruthi Thomas, MD, PhD|
|September||CP Genetics||Michael Kruer, MD|
|October||Speech and Participation||Kristen Allison, PhD|
|November||Family Attitudes About CP Diagnoses||Bhooma Aravamuthan, MD, DPhil|
MyCP is a web portal that provides the extended community of people with CP including caregivers and providers an open forum to discuss research, participate in research and read about the latest efforts led by CPRN. It is owned and operated by CPRN.