Cerebral Palsy Research Network Blog

CPRN Launches Community Education Webinars

The Cerebral Palsy Research Network (CPRN) has announced a new community education webinar series focused on its findings and directions in research for cerebral palsy (CP).  One webinar per month will be presented by the principal investigator conducting the research and be followed by an open Q&A.  Interested participants must sign-up. These webinars will not only provide the community with an excellent opportunity to learn about important new research projects but also to interact with the clinician researchers conducting these studies.  Webinars will occur on weeknights at 8 pm ET.

The first webinar, scheduled for Wednesday March 25, is focused on the preliminary findings about adult health and wellbeing from the adult registry that was launched last year.  It will be presented by Dr. Mary Gannotti, a professor from the University of Hartford and the co-chair of the CPRN adult study group, who has led the development of the study in conjunction with several clinicians who treat and study adults with CP in addition to help from the CPRN Adult Community Advisory Committee.

The webinars scheduled for the rest of the year include:

DateSubjectSpeaker
April 23Report from the CPRN Clinical RegistryGarey Noritz, MD
MayCerebral Palsy and EpilepsyAdam Ostendorf, MD
JunePractice Variation in Spasticity Management for DiplegicsPaul Gross
JulyFunctional Improved Related to Spasticity TreatmentsKristie Bjornson, PT, PhD
AugustPractice Variation in Spasticity Management for Children who are not AmbulatorySruthi Thomas, MD, PhD
SeptemberCP GeneticsMichael Kruer, MD
OctoberSpeech and ParticipationKristen Allison, PhD
NovemberFamily Attitudes About CP DiagnosesBhooma Aravamuthan, MD, DPhil

MyCP is a web portal that provides the extended community of people with CP including caregivers and providers an open forum to discuss research, participate in research and read about the latest efforts led by CPRN. It is owned and operated by CPRN.