The Cerebral Palsy Research Network (CPRN) participated in a symposium on collaborative research during the American Association of Neurological Surgery Pediatric section meeting in Nashville, TN in December 2018. Dr. Jeffrey Leonard, chief of pediatric neurosurgery at Nationwide Children’s Hospital and CPRN executive committee member, presented an overview of the work of CPRN to the general session of this annual meeting of neurosurgeons. Other networks included the Hydrocephalus Clinical Research Network, The Park Reeves Network, and the Pediatric Cervical Spine Society. Overall, there was a tremendous amount of interest in the CPRN. Audience members remarked that the network had accomplished a lot as illustrated by the number of patients entered into the registry. CPRN was differentiated by its use of the electronic medical record to garner clinical data and by its multi-discipline approach to collaborative research. Several sites inquired about joining the network and others inquired about leveraging the CPRN electronic medical record forms independent of participation in the network activities. This introduction of the pediatric neurosurgical community to the CPRN was highly successful and will hopefully generate future ideas for multi-site trials looking at surgical therapies for children with cerebral palsy.
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