The Cerebral Palsy Research Network (CPRN) received acceptances for all four abstracts that its investigators submitted to the annual meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) to be held on September 23-26, 2020 in New Orleans, Louisiana. CPRN noted that it submitted half as many abstracts this year because four of the eight from last year are proceeding toward publication! The annual AACPDM meeting is a great way for CPRN to disseminate its findings to the broader cerebral palsy provider and research community.
This year’s abstracts include:
- A scientific presentation on the CPRN clinical cerebral registry by Garey Noritz, MD.
- Two scientific presentations on adults with CP – one on health and wellbeing and the other on pain by Mary Gannotti, PT PhD.
- A breakfast seminar on how to participate in registry-based research with CPRN by Paul Gross and Garey Noritz, MD.
These presentations, like last year, are powered by the growth in the CPRN clinical and community registries which follow people with CP over the long term. Dr. Gannotti’s presentation will provide an interim report on adults from CPRN’s community registry hosted at MyCP.org. Dr. Noritz’s presentation will describe the characteristics of several thousand CP patients enrolled in the CPRN clinical registry from 12 sites including surgical interventions. Dr. Noritz and Mr. Gross will present researchers with how they can tap into these two registries to generate new knowledge in CP. People interested in preliminary versions of these presentations can sign up for the MyCP webinar series where Dr. Noritz will be presenting a snapshot of the CPRN clinical registry on April 23, 2020.