Cerebral Palsy Research Network Blog

CPRN and UVA Describe PCORI CP Study in Webinar

Learn about CP Intervention Study Application to PCORI

Richard Stevenson, M.D., University of Virginia

Richard Stevenson, M.D., University of Virginia

University of Virginia’s Dr. Richard Stevenson and CPRN Chairman Paul Gross hosted a webinar entitled “Comparative Effectiveness of Surgical and Non-Surgical Interventions for Ambulatory Children with Bilateral Spastic Cerebral Palsy using Patient Centered Outcomes” with CPRN Site Investigators and its recently reconstituted Patient Stakeholder Partners committee on Wednesday, August 10, 2016. We have posted the webinar of the call and the accompanying slides on CPRN’s Resource Page for public consumption. The mega application to the Patient-Centered Outcomes Research Institute (PCORI) totaled 770 pages including a 45-page research plan and a 379-page budget. The application garnered 142 letters of support and collaboration from CP focused investigators, societies and academies, patients and stakeholders. Set expectation of when you might find out about funding from PCORI.

Listen to the webinar to hear investigators Stevenson, Gross, Horn and Shusterman describe the planned study, the analysis, the use of the CPRN network and how patients and stakeholders will be involved. The webinar is 40 minutes long including Q&A.