Investigators from the Cerebral Palsy Research Network (CPRN) submitted four abstracts this week for the annual meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM). We will learn which abstracts are accepted in March. These submissions are reflective of the amount of activity within the network in its first two years. The abstracts include a scientific paper presentation, two breakfast seminars and one instructional course. The topics include:
- a preliminary report from the CPRN Registry,
- an overview of the CPRN capabilities and its Common Data Model that underlies the CPRN Registry,
- CPRN’s quality improvement (QI) infrastructure and first QI initiative,
- and a report from its summer 2017 workshop on setting a patient-centered research agenda for CP.
We are excited to gather in Montreal this fall and share the progress and future potential for CPRN.