Debbie Thorpe, PT, PhD and Mary Gannotti, PT, PhD, co-leaders of the CPRN Adult Registry group, received a grant from the Center on Health Services Training and Research entitled “Health Care Utilization for Musculoskeletal Disorders in Adults with Cerebral Palsy: An Analysis of Medicare Data.” This work will increase our understanding of healthcare utilization (real world care) for adults with cerebral palsy. The results of this study will lay the foundation for a program of research that will assess the quality and value of rehabilitation care for this population, with the ultimate objective of improving the health and quality of life of adults with cerebral palsy.

While this grant is not for a CPRN study, the learning from this study will help shape our patient reported outcomes registry work to seek the most important longitudinal outcomes.