The Cerebral Palsy Research Network (CPRN) will be conducting a one-hour webinar entitled “How to partner with CPRN to conduct multi-center trials” on January 17, 2019 at 7 pm ET. The webinar will be open to the public for those that sign up in advance. The target audience is comprised of clinicians, therapists and clinical researchers in cerebral palsy seeking to find partners to accelerate and strengthen CP research projects by accruing patients fasters.
Presenters:
- Paul Gross, BA – Chairman, Cerebral Palsy Research Network, Adjunct Associate Professor, University of Utah, Department of Population Health Sciences
- Jacob Kean, PhD – CPRN Data Center Principal Investigator, Associate Professor, University of Utah, Department of Population Health Sciences
- Michael Kruer, MD – Director, Cerebral Palsy & Pediatric Movement Disorders Program, Phoenix Children’s Hospital, University of Arizona
Attendees will be given an overview of how to work with CPRN to develop, fund and execute a study in conjunction with the sites that are members of CPRN. CPRN supports are variety of study types focused on the diagnosis and treatment of children and adults with CP including:
- multi-center clinical trials,
- quality improvement,
- clinical registry analyses and patient-reported outcomes.
Attendees will be led through the process of proposing study concepts to CPRN for approval and development into full applications to funding agencies with CPRN support using an exemplar that have recently been funded by NIH. Researchers will learn what resources are available to strengthen scientific applications including: the development of preliminary data through the CPRN registry; data collection with CPRN and the NINDS CDEs; access to engaged patients and caregivers to participate in study development; the volume of patients accessible through network studies; and CPRN subcommittees and processes to help develop high quality research applications.
The webinar will begin with a brief overview CPRN mission, objectives, sites and resources. Following the overview, we will discuss the types of studies supported CPRN and resources available both within the DCC and the network sites more broadly. We will describe how studies are developed by PIs leveraging these network capabilities through to submission for funding and execution on success. Michael Kruer, MD, pediatric neurologist at Phoenix Children’s, will present how his genetics study effort partnered with CPRN to enhance subject recruitment, enable rich phenotypic data collection and to analyze resultant data for his recently submitted NIH grant. We will close with a discussion of data collection instruments available from CPRN and open the webinar for Q&A.
To register for the webinar, please include your name and email address in the form below and press submit.
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