Registry Usage | Cerebral Palsy Research Network

Which network site are your responding for? Which network site are your responding for?

Which best describes your current strategy for including patients in the CPRN Registry?

Whole population based on diagnosis code

All patients that come to CP clinic

All patients that come to spasticity clinic (with a CP dx)

All patients that come to a subset of providers (single discipline) with a CP dx

All patients that come to a subset of providers (multiple disciplines) with a CP dx

All patients that receive a CP related neurosurgery

All patients that receive a CP related orthopedic surgery

A subset of patients for any of the above

OtherOther

If you are only collecting data on a subset of your non surgical patients, how would you describe your strategy for selecting those patients for capture in CPRN?

If you are entering data into the EMR using CPRN specific fields, which disciplines participate in this effort?

If you are doing chart abstraction for less than your whole population, which disciplines are being abstracted?

If you had to estimate, what percentage of the population with a CP diagnosis at your center are being captured in the registry?

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