The Research CP webinar series will include webinars that explain patient registries, patient reported outcome measures, quality improvement and explain how patient-centered clinical trial design is used to conduct comparative effectiveness research. The series will also review the state of publicly funded CP research, existing collaborative research networks and how quality improvement initiatives for CP are currently being evaluated and implemented to change treatments and interventions. Each webinar will include a scientific presentation by an expert who will highlight best practices on individual topics, followed by a question and answer session. Participation in these webinars will establish a common language and a baseline level of understanding for conducting patient-centered outcomes research.
The goal of the webinar series will be to educate patients, caregivers and providers on key topics in order to eventually conduct meaningful patient-centered comparative effectiveness research in cerebral palsy. The webinars will be recorded to enable broader distribution. Below is a list of the planned webinars, speakers, time frames and learning objectives. The purpose of this webinar series is to start to engage patients and caregivers in the clinical trial design process and to ensure that everyone is prepared and confident to contribute during the Research CP workshop. CP NOW and CPRN believe that this is a necessary and crucial component for setting a patient-centered comparative effectiveness research agenda because it will ensure meaningful and thoughtful discussions during our workshop.
|Watch #1: Research CP Project Overview
Ed Hurvitz, MD
|Wednesday, March 8, 2017 8 pm ET
This webinar will provide an overview of the Research CP project including the webinar series, survey and workshop. The overview will also include an explanation of collaborative research networks, the capabilities of CPRN and the landscape for funding of CP research.
MaterialsResearch CP Overview Webinar SlidesPost Webinar Survey
|Watch Webinar #2: Clinical Research and Comparative Effectiveness
|Susan Horn, PhD
|Wednesday, March 15, 2017, 8 pm ET
This webinar will provide an overview of the clinical research methods ranging from randomized control trials and practice based evidence studies for comparative effectiveness (determining the best interventions for patients by looking at outcomes).
MaterialsResearch CP Clinical Research Webinar SlidesPost Webinar SurveyClinical Research Webinar Lay Summary
|Watch Webinar #3: Quality Improvement
|Amy Bailes, PT PhD
|Wednesday, March 22, 2017, 8 pm ET
This webinar will describe quality improvement methodology as an alternative method to clinical research to achieve desired health outcomes.
MaterialsResearch CP Quality Improvement Webinar SlidesPost Webinar Survey
Embedded videosDefining Quality: Aiming for a Better Health Care SystemQuality Improvement in Healthcare
|Watch #4: Patient-Centered Research and Patient-Reported Outcomes
|Jacob Kean, PhD
|Wednesday, March 29, 2017, 8 pm ET
This webinar describes the paradigm shift in medical research embodied by “patient-centered research” and its benefit. It will also explain what patient-reported outcomes are and how they differ from other types of outcome measures.
MaterialsResearch CP Patient-Centered Research and Patient Reported Outcomes Webinar SlidesPost Webinar Survey
Embedded videosChanging the ConversationPatient Reported Outcome Measures
|Watch #5: Patient Registries
Jay Riva-Cambrin, MD
|Tuesday,April 4, 2017, 8 pm ET
This webinar will describe two different types of patient registries and how they can be used to advance different aspects of medical research.
MaterialsResearch CP Patient Registries Webinar SlidesPost Webinar Survey