Research CP: Patient Registries

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Research CP: Patient Registries Webinar 5
This webinar describes the research benefits of various types of patient registries. It features Dr. Jay Riva-Cambrin of the Hydrocephalus Clinical Research Network (HCRN) and Megan O’Boyle of Principal Investigator for the Phelan McDermid Syndrome International Research Registry. It also covers the types of registries supported by CPRN.
Patient-Centered Research and Patient-Reported Outcome MeasuresPatient-Centered Research and Patient-Reported Outcome MeasuresResearch CP: Patient Registries Webinar 5Research CP “Dystonia Edition”