Our CPRN Community Registry (CP-CORE) is a patient-powered registry that provides CPRN researchers with additional research opportunities by gathering data directly from people with CP and their caregivers. CP-CORE is a collection of REDCap based surveys that are developed by CPRN researchers and distributed to the community through MyCerebralPalsy.org (MyCP). People with CP and their caregivers sign-up to participate in research through the MyCP portal and are presented with surveys that are relevant to them. They may also opt-in to being contacted for relevant clinical trials.
Principal Investigator: Paul Gross, Adjunct Associate Professor, University of Utah