Cerebral Palsy Research Network Blog

Archive for Patient Reported Outcomes

CP CORE

CP CORE is the CPRN COmmunity REgistry for patient reported outcomes (PRO) and patient entered data. CP CORE is a resource for CPRN researchers to gather data directly from the CP community without requiring a clinician or research assistant to enter the data. The data can be collected in clinic or in the community via a computer, tablet or smartphone. CP CORE is intended to not only support PRO research but is also intended to provide a longitudinal platform for the study of outcomes. It can also be used as a contact registry for clinical studies providing a diverse base of patients who can be contacted to opt-in to clinical trials.