This is a minimal risk study without direct patient contact. Data will be acquired from hospital computer systems and medical records. The primary potential risk to subjects is improper disclosure of medical information. This risk is minimized by the data management steps outlined in this document.
There are no direct benefits for study participants. This study will provide previously unavailable epidemiological information about patients with cerebral palsy who are seen throughout the CPRN. This information will provide the basis for multi-institutional studies to be carried out by the CPRN that may improve the clinical care for patients with cerebral palsy. The continuing collection of such information serves to provide data necessary for hypothesis generation and study design.
Research subjects will not be compensated for their participation nor will study subjects incur any costs as a result of their inclusion in the study.