Cerebral Palsy Research Network Blog

Archive for Community Registry


CP CORE is the CPRN COmmunity REgistry for patient reported outcomes (PRO) and patient entered data. CP CORE is a resource for CPRN researchers to gather data directly from the CP community without requiring a clinician or research assistant to enter the data. The data can be collected in clinic or in the community via a computer, tablet or smartphone. CP CORE is intended to not only support PRO research but is also intended to provide a longitudinal platform for the study of outcomes. It can also be used as a contact registry for clinical studies providing a diverse base of patients who can be contacted to opt-in to clinical trials.