The Cerebral Palsy Research Network is organized into study groups. Study groups are organized around a population (adults), methodologies (quality improvement) or specific studies (PCORI application) to facilitate small group collaborations. Study groups use the CPRN clinical CP registry or the CPRN Community CP Registry to conduct pilot studies or surveys that are then used to form concepts for additional studies.
The current active study groups include:
- Adult Care Study Group, Principal Investigator, Garey Noritz, M.D.
- Adult Registry, Co-Principal Investigators Mary Gannotti, Ph.D. and Debbie Thorpe, Ph.D.
- Clinical Registry, Principal Investigator, Garey Noritz, M.D.
- Dystonia Study Group, Principal Investigators, Bhooma Aravamuthan, M.D., D.Phil., and Darcy Fehlings, M.D.
- Epilepsy Study Group, Principal Investigator, Adam Ostendorf, M.D.
- FIRST (Functional Improvements Realized from Spasticity Treatments), Co-Principal Investigators, Kristie Bjornson, P.T. Ph.D., Paul Gross, Jacob Kean, Ph.D. and Jeffrey Leonard, M.D.
- Genetics Study Group, Principal Investigator, Michael Kruer, M.D.
- Grip Strength Study Group, Principal Investigator, Ed Hurvitz, M.D.
- Hip Surveillance Study Group, Principal Investigator, Wade Shrader, M.D.
- Intrathecal Baclofen Pump Quality Improvement, Principal Investigator, Robert Bollo, M.D.
- Quality Improvement, Amy Bailes,P.T., Ph.D.