Study Groups

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The Cerebral Palsy Research Network is organized into study groups. Study groups are organized around a population (adults), methodologies (quality improvement) or specific studies (PCORI application) to facilitate small group collaborations. Study groups use the CPRN clinical CP registry or the CPRN Community CP Registry to conduct pilot studies or surveys that are then used to form concepts for additional studies.

The current active study groups include:

    • Adult Care Study Group, Principal Investigator, Ed Hurvitz, MD
    • Adult Registry, Co-Principal Investigators Mary Gannotti, Ph.D. and Debbie Thorpe, Ph.D.
    • Clinical Registry, Principal Investigators, Garey Noritz, M.D., Joyce Trost, P.T., Ph.D.
    • Dystonia Study Group, Principal Investigators, Bhooma Aravamuthan, M.D., D.Phil., Rose Gelineau-Morel, MD, Sruthi Thomas, MD, PhD.
    • Early Detection Study Group, Principal Investigator, Lisa Letzkus, PhD, RN, CPNP-AC
    • Epilepsy Study Group, Principal Investigator, Adam Ostendorf, M.D.
    • HIE Study Group, Danielle Guez Barber, MD, PhD
    • Surgical Spasticity Study, Principal Investigators,  Jeffrey Leonard, M.D.
    • Genetics Study Group, Principal Investigator, Michael Kruer, M.D.
    • Hip Surveillance Study Group, Principal Investigator, Wade Shrader, M.D.
    • Intrathecal Baclofen Pump Quality Improvement, Principal Investigator, Robert Bollo, M.D.
    • Nutrition Study Group, Judy-April Murayi, MD
    • Quality Improvement, Amy Bailes,P.T., Ph.D.