Pink and white publication of ‘Research CP -- Setting a Patient-Centered Research Agenda for Cerebral Palsy’

Relation of Speech-Language Profile and Communication Modality to Participation of Children With Cerebral Palsy American Journal of Speech-Language Pathology, January 12, 2024 Kristen M. Allison and Kayla M. Doherty, for the Cerebral Palsy Research Network Abstract…

 

Adults with cerebral palsy and chronic pain experience: A cross-sectional analysis of patient-reported outcomes from a novel North American registry Disability and Health Journal, November 13, 2023 Cristina A. Sarmiento, Mary E. Gannotti, Paul H. Gross, Deborah E. Thorpe, Edward A. Hurvitz, Garey H. Noritz, Susan D. Horn, Michael E. Msall, Henry G. Chambers, Linda E. Krach Abstract…

 

A Mixed-Methods Study of Practice Variation in Selective Dorsal Rhizotomy: A Study by the Cerebral Palsy Research Network (CPRN) Pediatric Neurology, September 25, 2023 Ziyad Makoshi, Jeffrey Raskin, Robert Bollo, Brandon Rocque, Susan Zickmund, Patrick Galyean, Grace Perry, Samuel Browd, Paul Gross, Kristie Bjornson, and Jeffrey Leonard Abstract…

 

A multicenter initiative to reduce intrathecal baclofen pump surgical site infection: a Cerebral Palsy Research Network quality improvement project Journal of Neurosurgery: Pediatrics, February 24, 2023 Robert J. Bollo, Paul H. Gross, Brandon G. Rocque, Samuel R. Browd, Jeffrey S. Raskin, Jeffrey R. Leonard, Lama Albarqawi, Amy F. Bailes, Cerebral Palsy Research Network (CPRN) Abstract…

 

Epilepsy and proxy-reported health-related quality of life in children and young people with non-ambulatory cerebral palsy Developmental Medicine & Child Neurology, July 12, 2022 Adam P. Ostendorf, Erika T. Axeen, Krista Eschbach, Erin Fedak Romanowski, Lindsey A. Morgan, Paul Gross, Unni G. Narayanan, Laurie Glader, Garey Noritz, for the Cerebral Palsy Research Network Abstract…

 

Top 10 Research Themes for Dystonia in Cerebral Palsy: A Community-Driven Research Agenda Neurology, June 17, 2022 Laura A. Gilbert, Darcy L. Fehlings, Paul Gross, Michael C. Kruer, Wendy Kwan, Jonathan W. Mink, Michele Shusterman, Bhooma R. Aravamuthan, and the Cerebral Palsy Research Network Dystonia Study Group Abstract…

 

Hip surveillance for patients with cerebral palsy in the United States Journal of Pediatric Rehabilitation Medicine, March 29, 2022 M. Wade Shrader, Paul H. Gross, Amy F. Bailes, Amanda T. Whitaker Abstract…

 

Diagnostic preferences amongst cerebral palsy community members: a cerebral palsy diagnosis should be accompanied by description of its etiology Developmental Medicine and Child Neurology, January 29, 2022 Bhooma R. Aravamuthan MD DPhil, Michele Shusterman, LeeAnne Green Snyder PhD, Monica E. Lemmon MD, Jennifer M. Bain MD PhD, Paul Gross BA For the Simons Searchlight Foundation, For the Cerebral Palsy Research Network Abstract…

 

The cerebral palsy research network: Building a learning health network for cerebral palsy Journal of Pediatric Rehabilitation Medicine, June 25, 2021 Bailes, Amy F., Kean, Jacob, Gross, Paul H., Narayanan, Unni, Noritz, Garey, Hurvitz, Ed, Leonard, Jeffrey, Shusterman, Michele, Gannotti, Mary Abstract…

 

Cerebral Palsy Research Network Clinical Registry: Methodology and Baseline Report Archives of Rehabilitation Research and Clinical Translation, April 19, 2020 Paul Gross, Mary Gannotti, PT, PhD, Amy Bailes PT, PhD, Susan D. Horn PhD, Jacob Kean, PhD, Unni G. Narayanan MBBS, MSc, FRCS(C), JerryOakes MD, Garey Noritz, MD, for the Cerebral Palsy Research Network Abstract…

 

Registry-based Research in Cerebral Palsy: The Cerebral Palsy Research Network Physical Medicine and Rehabilitation Clinics of North America, November 7, 2019 Edward A.Hurvitz MD, Paul H.Gross, Mary E.Gannotti PT, PhD, Amy F.Bailes PT, PhD, Susan D.Horn PhD Abstract…

 

Research CP: Setting a patient-centered research agenda for cerebral palsy Developmental Medicine and Child Neurology, August 21, 2018 Gross, PH, Bailes, AF, Horn, SD, Hurvitz, EA, Kean, J, Shusterman, M Abstract…

 

The information from this page appears in our free and downloadable cerebral palsy tool kit.