Pink and white publication of ‘Research CP -- Setting a Patient-Centered Research Agenda for Cerebral Palsy’

Research CP: Setting a patient-centered research agenda for cerebral palsy Developmental Medicine and Child Neurology, August 21, 2018 Gross, PH, Bailes, AF, Horn, SD, Hurvitz, EA, Kean, J, Shusterman, M Abstract…

 

Registry-based Research in Cerebral Palsy: The Cerebral Palsy Research Network Physical Medicine and Rehabilitation Clinics of North America, November 7, 2019 Edward A.Hurvitz MD, Paul H.Gross, Mary E.Gannotti PT, PhD, Amy F.Bailes PT, PhD, Susan D.Horn PhD Abstract…

 

Cerebral Palsy Research Network Clinical Registry: Methodology and Baseline Report Archives of Rehabilitation Research and Clinical Translation, April 19, 2020 Paul Gross, Mary Gannotti, PT, PhD, Amy Bailes PT, PhD, Susan D. Horn PhD, Jacob Kean, PhD, Unni G. Narayanan MBBS, MSc, FRCS(C), JerryOakes MD, Garey Noritz, MD, for the Cerebral Palsy Research Network Abstract…

 

The cerebral palsy research network: Building a learning health network for cerebral palsy Journal of Pediatric Rehabilitation Medicine, June 25, 2021 Bailes, Amy F., Kean, Jacob, Gross, Paul H., Narayanan, Unni, Noritz, Garey, Hurvitz, Ed, Leonard, Jeffrey, Shusterman, Michele, Gannotti, Mary Abstract…

 

Diagnostic preferences amongst cerebral palsy community members: a cerebral palsy diagnosis should be accompanied by description of its etiology Developmental Medicine and Child Neurology, January 29, 2022 Bhooma R. Aravamuthan MD DPhil, Michele Shusterman, LeeAnne Green Snyder PhD, Monica E. Lemmon MD, Jennifer M. Bain MD PhD, Paul Gross BA For the Simons Searchlight Foundation, For the Cerebral Palsy Research Network Abstract…

 

Top 10 Research Themes for Dystonia in Cerebral Palsy: A Community-Driven Research Agenda Neurology, June 17, 2022 Laura A. Gilbert, Darcy L. Fehlings, Paul Gross, Michael C. Kruer, Wendy Kwan, Jonathan W. Mink, Michele Shusterman, Bhooma R. Aravamuthan, and the Cerebral Palsy Research Network Dystonia Study Group Abstract…

 

Hip surveillance for patients with cerebral palsy in the United States Journal of Pediatric Rehabilitation Medicine, March 29, 2022 M. Wade Shrader, Paul H. Gross, Amy F. Bailes, Amanda T. Whitaker Abstract…

 

Epilepsy and proxy-reported health-related quality of life in children and young people with non-ambulatory cerebral palsy Developmental Medicine & Child Neurology, July 12, 2022 Adam P. Ostendorf, Erika T. Axeen, Krista Eschbach, Erin Fedak Romanowski, Lindsey A. Morgan, Paul Gross, Unni G. Narayanan, Laurie Glader, Garey Noritz, for the Cerebral Palsy Research Network Abstract…

 

The information from this page appears in our free and downloadable cerebral palsy tool kit.