The power of a research network comes from ability to pool the patient data from many centers. During our initial registry definition phase, participation in the network is very broad. The pooled data will be stored at our Data Coordinating Center at the University of Utah in the Department of Health Science Research and Innovation.

Charter Members

Charter Members are the sites and investigators piloting the CPRN cerebral palsy registry and defining the initial Standard Operating Procedures for the network. All charter members are part of the CPRN Investigator Committee. The names in bold are also part of the CPRN Executive Committee. Green markers indicate sites where patients are actively being included in the registry. Sites with yellow markers are next to come on line enrolling patients. Sites with red markers are preparing to capture patient data in the registry. Sites with blue markers are candidate sites that have initiated the work to become CPRN centers and implement the CPRN Clinical Registry.

Participating Centers

Hospital University Principal Investigator
AI Dupont/Nemours Wade Sharder, M.D., Orthopedic Surgery
Alternate PI: Kenneth Rogers, Ph.D.
Benioff Children’s Hospital Oakland UCSF Ravinder Brar, M.D., M.P.H. Orthopedic Surgery
Boston Children’s Harvard University Benjamin Shore, M.D., M.P.H., Orthopedic Surgery
Alternate PI: Brian Snyder, M.D., Ph.D., Orthopedic Surgery
Children’s of Alabama University of Alabama Brandon Rocque, M.D., Neurosurgery
Cincinnati Children’s University of Cincinnati Charles Stephenson, M.D., Neurosurgery

Amy Bailes, Physical Therapy, PhD;

Children’s Hospital Colorado University of Colorado Joyce Oleszek, M.D., Physical Medicine and Rehabilitation
Alternate PI: Wendy Pierce, M.D., Physical Medicine and Rehabilitation
Gillette Children’s Specialty Hospital Tom Novacheck, M.D., Orthopedic Surgery
Alternate PI: Angela Sinner, D.O.
Nationwide Children’s Hospital Ohio State University Jeffrey Leonard, M.D., Neurosurgery

Garey Noritz, M.D., Developmental Pediatrics

Primary Children’s Hospital University of Utah Robert Bollo, M.D., Neurosurgery
Alternate PI: Allison Oki, M.D., Physical Medicine and Rehabilitation
Phoenix Children’s Hospital University of Arizona Michael Kruer, M.D., Neurology
Alternate PI: Mohan Belthur, M.D., Orthopedic Surgery
Rady Children’s Hospital UCSD Pritha Dalal, M.D., Physical Medicine and Rehabilitation
Alternate PI: Andrew Skalsky, M.D., Physical Medicine and Rehabilitation
Riley Children’s Hospital Indiana University Jeffrey Raskin, M.D., Neurosurgeon
Clinical Research Coordinator: Connie Garland
Seattle Children’s Hospital University of Washington Kristie Bjornson, Physical Therapy, PhD
SickKids University of Toronto Unni Narayanan, M.D., Orthopedic Surgery
Texas Children’s Hospital Baylor College of Medicine Aloysia Schwabe, M.D., Physical Medicine and Rehabilitation
Alternate PI: Sruthi Thomas, MD, PhD
UCLA Health UCLA Rachel Thompson, M.D., Orthopedic Surgery
Alternate PI: Allen Chen, M.D., Physical Medicine and Rehabilitation
University of Florida Christine Thorogood, M.D., Physical Medicine and Rehabilitation
Alternate PI: Louise Spierre, M.D., Physical Medicine and Rehabilitation
University of Hartford Mary Gannotti, Physical Therapy, Ph.D.
University of Michigan Medical Center University of Michigan Ed Hurvitz, M.D., Physical Medicine and Rehabilitation
Alternate PI: Clifford Craig, M.D., Orthopedic Surgery
University of North Carolina — Chapel Hill University of North Carolina — Chapel Hill Deborah Thorpe, Ph.D., Physical Therapy
Alternate PI: Josh Alexander, M.D., Physical Medicine and Rehabilitation
University of Texas Health Science Center — Houston University of Texas Manish Shah, M.D., Neurosurgery
University of Virginia University of Virginia Valentina Intagliata, M.D., Developmental Pediatrics
Alternate PI: Richard Stevenson, M.D., Developmental Pediatrics
Yale University Medical Center Yale University David Frumberg, M.D., Orthopedic Surgery