The power of a research network comes from ability to pool the patient data from many centers. During our initial registry definition phase, participation in the network is very broad. The pooled data will be stored at our Data Coordinating Center at the University of Utah in the Department of Health Science Research and Innovation.
Charter Members
Charter Members are the sites and investigators piloting the CPRN cerebral palsy registry and defining the initial Standard Operating Procedures for the network. All charter members are part of the CPRN Investigator Committee. The names in bold are also part of the CPRN Executive Committee. Green markers indicate sites where patients are actively being included in the registry. Sites with yellow markers are next to come on line enrolling patients. Sites with red markers are preparing to capture patient data in the registry. Sites with blue markers are candidate sites that have initiated the work to become CPRN centers and implement the CPRN Clinical Registry.
Participating Centers
| Hospital | University | Principal Investigator |
|---|---|---|
| AI Dupont/Nemours | Wade Sharder, M.D., Orthopedic Surgery Alternate PI: Kenneth Rogers, Ph.D. |
|
| Benioff Children’s Hospital Oakland | UCSF | Ravinder Brar, M.D., M.P.H. Orthopedic Surgery |
| Boston Children’s | Harvard University | Benjamin Shore, M.D., M.P.H., Orthopedic Surgery Alternate PI: Brian Snyder, M.D., Ph.D., Orthopedic Surgery |
| Children’s of Alabama | University of Alabama | Brandon Rocque, M.D., Neurosurgery |
| Cincinnati Children’s | University of Cincinnati | Charles Stephenson, M.D., Neurosurgery
Amy Bailes, Physical Therapy, PhD; |
| Children’s Hospital Colorado | University of Colorado | Joyce Oleszek, M.D., Physical Medicine and Rehabilitation Alternate PI: Wendy Pierce, M.D., Physical Medicine and Rehabilitation |
| Gillette Children’s Specialty Hospital | Tom Novacheck, M.D., Orthopedic Surgery Alternate PI: Angela Sinner, D.O. |
|
| Nationwide Children’s Hospital | Ohio State University | Jeffrey Leonard, M.D., Neurosurgery
Garey Noritz, M.D., Developmental Pediatrics |
| Oklahoma Children’s Hospital | Oklahoma University | Virenda Desai, M.D., Neurosurgery Alternate PI: Joanna Gernsbeck, M.D., Neurosurgery |
| Primary Children’s Hospital | University of Utah | Robert Bollo, M.D., Neurosurgery Alternate PI: Allison Oki, M.D., Physical Medicine and Rehabilitation |
| Phoenix Children’s Hospital | University of Arizona | Michael Kruer, M.D., Neurology Alternate PI: Mohan Belthur, M.D., Orthopedic Surgery |
| Rady Children’s Hospital | UCSD | Pritha Dalal, M.D., Physical Medicine and Rehabilitation Alternate PI: Andrew Skalsky, M.D., Physical Medicine and Rehabilitation |
| Riley Children’s Hospital | Indiana University | Jeffrey Raskin, M.D., Neurosurgeon Clinical Research Coordinator: Connie Garland |
| Seattle Children’s Hospital | University of Washington | Kristie Bjornson, Physical Therapy, PhD |
| Shirley Ryan Ability Lab | Northwestern University | Tim Krater, M.D., Physical Medicine and Rehabilitation Alternate PI: Ana-Marie Rojas, M.D., Physical Medicine and Rehabilitation |
| SickKids | University of Toronto | Unni Narayanan, M.D., Orthopedic Surgery |
| Texas Children’s Hospital | Baylor College of Medicine | Aloysia Schwabe, M.D., Physical Medicine and Rehabilitation Alternate PI: Sruthi Thomas, MD, PhD |
| UCLA Health | UCLA | Rachel Thompson, M.D., Orthopedic Surgery Alternate PI: Allen Chen, M.D., Physical Medicine and Rehabilitation |
| University of Florida | Christine Thorogood, M.D., Physical Medicine and Rehabilitation Alternate PI: Louise Spierre, M.D., Physical Medicine and Rehabilitation |
|
| University of Hartford | Mary Gannotti, Physical Therapy, Ph.D. | |
| University of Michigan Medical Center | University of Michigan | Ed Hurvitz, M.D., Physical Medicine and Rehabilitation Alternate PI: Clifford Craig, M.D., Orthopedic Surgery |
| UNM Children’s Hospital | University of New Mexico | James Botros, M.D., Neurosurgery |
| University of North Carolina — Chapel Hill | University of North Carolina — Chapel Hill | Deborah Thorpe, Ph.D., Physical Therapy Alternate PI: Josh Alexander, M.D., Physical Medicine and Rehabilitation |
| University of Texas Health Science Center — Houston | University of Texas | Manish Shah, M.D., Neurosurgery Alternate PI: Simra Javaid, DO, FAAPMR, Physical Medicine and Rehabilitation |
| UVA Children’s Hospital | University of Virginia | Valentina Intagliata, M.D., Developmental Pediatrics Alternate PI: Richard Stevenson, M.D., Developmental Pediatrics |
| Yale University Medical Center | Yale University | David Frumberg, M.D., Orthopedic Surgery |
