The CPRN Clinical Registry is implemented at sites using one of two methods:
  1. CPRN Data collection forms built into the Electronic Medical Records System (EMR) where data is collected as a standard part of clinical care by the provider, or
  2. Chart abstraction by clinical research assistant by reviewing the medical note in the EMR.

The table below provides the status of every site that has been invited to join the network. Data from the EMR is transferred to the registry database housed at the University of Utah. The columns below are in reverse chronological order, i.e., the right most column is the first step for a CPRN site to prepare the registry. Institutional Review Board (IRB) dates are based on the most recent renewal of the IRB protocol for the registry.

Symbol Meaning
Ongoing
Completed
Progress toward milestone
Not working
Not started

Edit Entries | Add New Site

Site Active Site Institutional Review Board Approval EMR Forms Ready Enrolling Patients Transferring Registry Data
AI duPont Hospital for Children

November 1, 2022

Akron Children’s Hospital

May 30, 2023

Bethany Children’s Health Center

September 14, 2023
Boston Children’s Hospital

December 22, 2023

Children’s Hospital Colorado

October 6, 2022

Children’s Mercy Hospital

Children’s National

September 5, 2023

Children’s of Alabama

July 17, 2023

Cincinnati Children’s Hospital

June 22, 2023

Columbia University Weinberg Center

May 3, 2024

Cook Children’s Hospital

Gillette Specialty Care

November 5, 2022

Johns Hopkins

January 24, 2024

Kennedy Krieger Institute

January 24, 2024

Le Bonheur Children’s Hospital / Campbell Foundation

January 19, 2023

Lurie Children’s Hospital of Chicago

September 26, 2022

Mayo Clinic

June 22, 2023
Mt. Washington Pediatric Hospital

January 24, 2024

Nationwide Children’s Hospital

October 31, 2022

Phoenix Children’s Hospital

September 19, 2022

Primary Children’s Hospital

February 14, 2023

Riley Children’s Hospital

October 31, 2022

Seattle Children’s Hospital

October 31, 2022

Shirley Ryan Ability Lab

February 10, 2020
St. Louis Children’s Hospital

June 6, 2023

Texas Children’s Hospital

January 30, 2023
UCSD / Rady Children’s Hospital

September 19, 2023

University of California — San Francisco (UCSF)

January 22, 2024
University of Michigan Medical Center

July 19, 2023

University of Oklahoma

April 17, 2023

University of Virginia

January 24, 2023

University of Wisconsin – Madison

UT Health — Houston

September 28, 2022