Registry-based Research in Cerebral Palsy: The Cerebral Palsy Research Network
Physical Medicine and Rehabilitation Clinics of North America, November 7, 2019
Edward A.Hurvitz MD, Paul H.Gross, Mary E.Gannotti PT, PhD, Amy F.Bailes PT, PhD, Susan D.Horn PhD
• A national, center-based cerebral palsy registry has been built by the Cerebral Palsy Research Network to facilitate comparative effectiveness research using practice-based evidence.
• A patient-centered research agenda for cerebral palsy highlighted the need for the longitudinal studies of aging, exercise, and the comparative effectiveness of interventions.
• A multicenter registry and network can enable the development of learning health systems to improve outcomes in cerebral palsy.