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68 search results for: spasticity


SDR Study Site Planning Survey

We have reached a next milestone in our resubmission for Functional Improvements Related to Spasticity Treatments to NIH on November 18. We need to (re)collect preliminary data from each of your sites to plan the study budget and enrollment. Please review this page and form which describes the inclusion / exclusion criteria in the form…


Cerebral Palsy and Employment

Cerebral Palsy and Employment Gaining and keeping employment is hard for anyone, but more so with a disability. According to the Bureau of Labor Statistics, 19.3% of persons with a disability were employed in 2019. By contrast, the employment-population ratio for people without a disability was 66.3%. There are many factors that likely contribute to…


Cerebral Palsy Research Overview

The Cerebral Palsy Research Network has been established to conduct several types of clinical research and quality initiatives. The network is intended to create a collaborative environment for clinical researchers to establish study questions and quality initiatives. The preliminary data provided by the registry will allow researchers in the network to write more robust grant applications…


Charles Stevenson, MD

Charles Stevenson, MD, is currently Associate Professor of Neurological Surgery and Pediatrics at the Cincinnati Children’s Hospital Medical Center and serves as the Surgical Director of The Cure Starts Now Foundation Brain Tumor Center at Cincinnati Children’s. He joined the Division of Pediatric Neurosurgery at Cincinnati Children’s in July 2010. A graduate of the Vanderbilt…


Cerebral Palsy and Functional Decline

Cerebral Palsy and Functional Decline One of the most discussed topics by adults in the cerebral palsy community is functional decline and preventing and treating it. While children with cerebral palsy have access to multiple state and federally funded assistance programs and insurance coverage for therapy, there is presently a deficit in options for adolescents…


Study Groups

The current active study groups include: Adult Care Study Group, Principal Investigator, Garey Noritz, M.D. Adult Registry, Co-Principal Investigators Mary Gannotti, Ph.D. and Debbie Thorpe, Ph.D. Clinical Registry, Principal Investigator, Garey Noritz, M.D. Dystonia Study Group, Principal Investigators, Bhooma Aravamuthan, M.D., D.Phil., and Darcy Fehlings, M.D. Epilepsy Study Group, Principal Investigator, Adam Ostendorf, M.D. FIRST…


Using Public Restrooms

Using Public Restrooms with Cerebral Palsy   Taking your child to a public restroom is hard. I think it will serve you best by telling you this up front so that you will not feel defeated if you find yourself struggling to figure this piece out. It is not so bad when you have an…


Cerebral Palsy and Toileting

As with other areas of development, bring your patience before embarking on this journey. This can be a very emotional time for everyone. It may be helpful to approach toileting as a process  where you open yourself to learning more about your child in the most non-judgmental manner possible. The shifts in muscle tone that…


Cerebral Palsy Medications

Spastic CP Medications Medications prescribed for treating spastic cerebral palsy are intended to help reduce the muscle tightness, improve range of motion and sometime to try and reduce or eliminate pain. Some examples of medications commonly prescribed to address the spasticity symptoms include: Oral Baclofen- Can also be delivered via a pump that is surgically implanted;…