To participate in our surveys, you must be a member of MyCP which you can join for free. After we gather some basic demographics about you or your loved one, we will present you studies that are relevant to you or your loved one. Below is a table of all of our surveys in the MyCP Community Registry and then some charts about the make up of the MyCP community. New studies are added regularly. At this time we only have surveys for people with CP and caregivers. We do not have surveys for the clinical community.
MyCP Parent Community Registry Consent Study Summary
Status: Active Timeline: March 23, 2019 and beyond
Study Type: Community Registry Survey
Brief Description:
Consent for participation in CP Research Network Community Registry surveys.
Inclusion criteria: Any child under 18 in community registry
Exclusion criteria:
Principal Investigator(s): Paul Gross, University of Utah
Study Contact: paul.gross@hsc.utah.edu
- Person/Caregiver: 1894
- Advocate: 91
- Provider: 283
- Researcher: 66
- Industry: 37
- Self: 943
- Parent: 846
- Spouse/Partner: 12
- Sibling: 23
- Caregiver: 37
- Other Relative: 33
