To participate in our surveys, you must be a member of MyCP which you can join for free. After we gather some basic demographics about you or your loved one, we will present you studies that are relevant to you or your loved one. Below is a table of all of our surveys in the MyCP Community Registry and then some charts about the make up of the MyCP community. New studies are added regularly. At this time we only have surveys for people with CP and caregivers. We do not have surveys for the clinical community.
Cerebral Palsy Sensory Survey Study Summary
Status: Completed Timeline: April 2022 – August 2022
Study Type: Community Registry Survey
Brief Description:
People with cerebral palsy may sense the world around them differently (including with the senses of touch, taste, smell, vision, and hearing). We would like to know how the person in your life with cerebral palsy (either yourself or your loved one) senses the world around them and how this might be associated with that person’s functional abilities and any unintentional movements they may have. It is important for us to understand what, if any, sensory concerns people with cerebral palsy may have.
Study overview page: Cerebral Palsy Sensory Survey Overview
Inclusion criteria: Caregivers of children with CP and adults with CP of all ages can participate in this study.
Exclusion criteria: None
Principal Investigator(s): Bhooma Aravamuthan, MD, DPhil
Study Contact: paul@cprn.org
- Person/Caregiver: 1894
- Advocate: 91
- Provider: 283
- Researcher: 66
- Industry: 37
- Self: 943
- Parent: 846
- Spouse/Partner: 12
- Sibling: 23
- Caregiver: 37
- Other Relative: 33
