The power of a research network comes from ability to pool the patient data from many centers. During our initial registry definition phase, participation in the network is very broad. The pooled data will be stored at our Data Coordinating Center at the University of Utah in the Department of Health Science Research and Innovation.
Participating Centers in Registry Definition Phase
| University | Hospital | Lead Participants |
|---|---|---|
| 1 CP Place | Dr. Jan Brunstrom, Pediatric Neurology | |
| AI Dupont/Nemours | Dr. Freeman Miller, Orthopedic Surgery | |
| Harvard University | Boston Children’s | Dr. Laurie Glader, Pediatrics
Dr. Shenandoah Robinson, Neurosurgery Dr. Benjamin Shore, Orthopedic Surgery |
| University of Alabama | Children’s of Alabama | Dr. Jerry Oakes, Neurosurgery
Dr. Brandon Rocque, Neurosurgery |
| University of Cincinnati | Cincinnati Children’s | Dr. Jilda Vargus-Adams, Physical Medicine and Rehabilitation
Amy Bailes, PhD, Physical Therapy; Dr. James McCarthy, Orthopedic Surgery Dr. Charles Stevenson, Neurosurgery |
| University of Colorado | Colorado Children’s Hospital | Dr. Dennis Matthews, Physical Medicine and Rehabilitation |
| Columbia University | Columbia University | Dr. Richard Anderson, Neurosurgery
Dr. David Roye, Orthopedic Surgery |
| Gillette Children’s Specialty Healthcare | Dr. Tom Novacheck, Orthopedic Surgery Dr. Michael Partington, Neurosurgery |
|
| Johns Hopkins University | Kennedy Krieger Institute | Christopher Joseph, MSPT, Physical Therapy |
| University of Michigan | University of Michigan Medical Center | Dr. Ed Hurvitz, Physical Medicine and Rehabilitation |
| Ohio State University | Nationwide Children’s Hospital | Dr. Laura Gill, Orthopedic Surgery
Dr. Jeffrey Leonard, Neurosurgery Linda Lowes, PhD, Physical Therapy Dr. Garey Norvitz, Developmental Pediatrics
|
| Northwestern University | Rehabilitation Institute of Chicago | Dr. Gadi Revivo, Physical Medicine and Rehabilitation |
| Scottish Rite Children’s Hospital | Dr. Mauricio Delgado, Neurology | |
| Shriners of Sacremento | Anita Bagley, PhD, Motion Analysis
Dr. Jon Davids, Orthopedic Surgery |
|
| Shriners of Springfield | Mary Gannotti, PhD, Physical Therapy | |
| University of Texas Medical Branch | University of Texas Medical Branch – Galveston | Dr. David Yngve |
| University of Toronto | SickKids | Dr. Unni Narayanan, Orthopedic Surgery |
| UCLA | UCLA | Marcia Greenberg, PT
Dr. William Oppenheim, Orthopedic Surgery |
| UCSD | Rady Children’s Hospital | Dr. Hank Chambers, Orthopedic Surgery |
| UCSF | Benioff Children’s Hospital | Dr. Amy Viehoever, Neurology
Dr. Yvonne Wu, Neurology |
| University of Florida | Wolfson Children’s Hospital | Dr. Philipp Aldana, Neurosurgery
Dr. Aga Lewelt, Physical Medicine and Rehabiliation |
| University of Utah | Primary Children’s Hospital | Dr. Robert Bollo, Neurosurgery |
| University of Washington | Seattle Children’s Hospital | Kristie Bjornson, PhD, Physical Therapy |
| University of Virginia | University of Virginia | Dr. Mark Romness, Orthopedic Surgery
Dr. Richard Stevenson, Developmental Pediatrics |
