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To participate in our surveys, you must be a member of MyCP which you can join for free. After we gather some basic demographics about you or your loved one, we will present you studies that are relevant to you or your loved one. Below is a table of all of our surveys in the MyCP Community Registry and then some charts about the make up of the MyCP community. New studies are added regularly. At this time we only have surveys for people with CP and caregivers. We do not have surveys for the clinical community.

Consequences of Falls  Study Summary

Status: Active  Timeline: June 2022 – July 2022

Study Type: Community Registry Survey

Brief Description:

Better understanding the physiological and psychological consequences of falls is relevant to the cerebral palsy (CP) community and stakeholders because frequent trips and falls are common occurrences reported by patients and families. Learning what activities or conditions contribute to falls, how individuals fall, resulting injuries, and conscious behavior modifications due of falls can improve exercise recommendations and psychology referrals (e.g., for fall anxiety, activity avoidance), provide empirical numbers to enhance clinical awareness, and help us create tools and opportunities for safer community participation

Inclusion criteria: Self reporting adults with CP that are ambulatory

Exclusion criteria: Adults that are not ambulatory

Principal Investigator(s): Elizabeth Boyer, PhD

Study Contact: paul@cprn.org

Total MyCP Members: 1891
Members
  • Person/Caregiver: 1510
  • Advocate: 69
  • Provider: 233
  • Researcher: 48
  • Industry: 32

Relationship to person with CP
  • Self: 786
  • Parent: 648
  • Spouse/Partner: 10
  • Sibling: 20
  • Caregiver: 25
  • Other Relative: 21