To participate in our surveys, you must be a member of MyCP which you can join for free. After we gather some basic demographics about you or your loved one, we will present you studies that are relevant to you or your loved one. Below is a table of all of our surveys in the MyCP Community Registry and then some charts about the make up of the MyCP community. New studies are added regularly. At this time we only have surveys for people with CP and caregivers. We do not have surveys for the clinical community.

Adult Wellbeing  Study Summary

Status: Active  Timeline: March 2019 –

Study Type: Community Registry Survey

Brief Description:

The following series of questions will ask about things such as how long you went to school, how you move around and communicate and the status of your health. We will also ask about the way you feel, if you have pain, and if you had surgery as a child. We are particularly interested in your viewpoint on whether you think people have treated you differently as a result of having cerebral palsy.

Inclusion criteria: Self reporting adults with CP 18 years of age or older

Exclusion criteria: Adults that cannot take the survey directly

Principal Investigator(s): Mary Gannotti, PT, PhD and Deborah Thorpe, PT, PhD

Study Contact: paul@cprn.org

Total MyCP Members: 1272
Members
  • Person/Caregiver: 1010
  • Advocate: 38
  • Provider: 173
  • Researcher: 35
  • Industry: 16

Relationship to person with CP
  • Self: 537
  • Parent: 425
  • Spouse/Partner: 7
  • Sibling: 10
  • Caregiver: 15
  • Other Relative: 16