To participate in our surveys, you must be a member of MyCP which you can join for free. After we gather some basic demographics about you or your loved one, we will present you studies that are relevant to you or your loved one. Below is a table of all of our surveys in the MyCP Community Registry and then some charts about the make up of the MyCP community. New studies are added regularly. At this time we only have surveys for people with CP and caregivers. We do not have surveys for the clinical community.

Caregiver Priorities & Child Health Index of Life with Disabilities-Parent Version  Study Summary

Status: Active  Timeline: March 2019 –

Study Type: Community Registry Survey

Brief Description:

The CPCHILD questionnaire assesses how parents or caregivers rate their child about various issues related to daily activities, self care, getting around, comfort, communication, social interaction and health.

Inclusion criteria: Children between six (6) and 18 years of age who are not ambulatory.

Exclusion criteria: Children who are ambulatory.

Principal Investigator(s): Paul Gross

Study Contact: paul@cprn.org

Total MyCP Members: 1272
Members
  • Person/Caregiver: 1010
  • Advocate: 38
  • Provider: 173
  • Researcher: 35
  • Industry: 16

Relationship to person with CP
  • Self: 537
  • Parent: 425
  • Spouse/Partner: 7
  • Sibling: 10
  • Caregiver: 15
  • Other Relative: 16