To participate in our surveys, you must be a member of MyCP which you can join for free. After we gather some basic demographics about you or your loved one, we will present you studies that are relevant to you or your loved one. Below is a table of all of our surveys in the MyCP Community Registry and then some charts about the make up of the MyCP community. New studies are added regularly. At this time we only have surveys for people with CP and caregivers. We do not have surveys for the clinical community.
Community Attitudes on a CP Diagnosis Study Summary
Status: Completed Timeline: June 2020 –
Study Type: Community Registry Survey
Please consider taking this 10-15 minute anonymous research survey asking your views on what it means to carry a cerebral palsy diagnosis. Our goal is to share the information gathered from this survey with medical providers to optimize how they diagnose cerebral palsy and related disorders.
Inclusion criteria: Parents or caregivers of children with a diagnosis of cerebral palsy; adults with cerebral palsy.
Principal Investigator(s): Bhooma Aravamuthan, MD, DPhil
Study Contact: firstname.lastname@example.org
- Person/Caregiver: 1429
- Advocate: 64
- Provider: 222
- Researcher: 43
- Industry: 31
- Self: 752
- Parent: 608
- Spouse/Partner: 8
- Sibling: 17
- Caregiver: 25
- Other Relative: 19