To participate in our surveys, you must be a member of MyCP which you can join for free. After we gather some basic demographics about you or your loved one, we will present you studies that are relevant to you or your loved one. Below is a table of all of our surveys in the MyCP Community Registry and then some charts about the make up of the MyCP community. New studies are added regularly. At this time we only have surveys for people with CP and caregivers. We do not have surveys for the clinical community.

Study Name Inclusion Criteria
Adult Wellbeing Self reporting adults with CP 18 years of age or older
Caregiver Priorities & Child Health Index of Life with Disabilities-Parent Version Children between six (6) and 18 years of age who are not ambulatory.
Chronic Pain (multiple surveys) Self reporting adults with CP 18 years of age or older
Community Attitudes on a CP Diagnosis Parents or caregivers of children with a diagnosis of cerebral palsy; adults with cerebral palsy.
Functional Movement (multiple surveys) Self reporting adults with CP 18 years of age or older
Gait Outcome Assessment List – Parent Version Children between six (6) and 18 years of age who are ambulatory.
Medical History – General (multiple surveys) Any one in community registry
MyCP Community Registry Consent Any one in community registry
Speech and Language Predictors of Participation for Children with CP Children with a diagnosis of CP between the ages of four (4) and less than 18 years of age

Total MyCP Members: 1386
Members
  • Person/Caregiver: 1095
  • Advocate: 43
  • Provider: 187
  • Researcher: 39
  • Industry: 22

Relationship to person with CP
  • Self: 584
  • Parent: 459
  • Spouse/Partner: 7
  • Sibling: 10
  • Caregiver: 19
  • Other Relative: 16