Cerebral Palsy Research Network Blog

The Genesis of the Cerebral Palsy Research Network

CPRN founder, Paul Gross, was recognized with the “Making a Difference” award at the annual American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) in October 2015. Paul was given an opportunity to address the general assembly of 1,100 attendees after accepting the award. His speech, entitled “From Anxiety to Impact: Focusing Parental Anxiety on Advancing Research” described his journey into clinical research with his wife Lori after the premature birth of their son. AACPDM posted this general session recently. The video, 19 minutes in total, provides the back story to the creation of the Cerebral Palsy Research Network (CPRN). Gross describes his son’s early birth trauma, his initial diagnosis of hydrocephalus, and how he applied his business skills to an under researched area of medicine. He then connects that experience with his son’s later diagnosis of cerebral palsy and his wife’s insistence that he apply his learning in clinical research to the founding of CPRN.

“From Anxiety to Impact: Focusing Parental Anxiety on Advancing Research” was presented by Paul as a keynote at the meeting. You can watch it here to understand how CPRN was started and why there is such commitment to improving the lives for those who live with cerebral palsy.