Cerebral Palsy Research Network Blog

Registry Elements

Registry Element: CPRN0095
Name: Who are the caregivers?
Data Type: Alphanumeric Input Restrictions: Multiple Pre-Defined Values
Definition:

Type of relationship that the person who serves as the participant/subject’s primary caregiver has with the participant/subject. (NINDS)

Permissible Values

Value Description Epic SmartData Element
1 Parents
2 Foster Parents
3 Grandparents (or other relative)
4 Group Home
5 Living Independently
6 Adoptive parent
7 Case Manager
8 None
Measurement Type:
Population: Adult, Pediatric
Epic SmartData Elements:
Version: 3.1