Cerebral Palsy Research Network Blog

_NINDS CDE


Field Value
CDE ID C21933
CDE Name Pediatric Quality of Life Inventory (PedsQL) – Problem fear scale
Variable Name PedsQLAfraidScl
Definition

Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL).

Description

Never;Almost never;Sometimes;Often;Almost Always;

Instructions

On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help.

Input Restrictions Single Pre-Defined Value Selected
Permissible Values

0;1;2;3;4;

Question Text EMOTIONAL FUNCTIONING: FEELING SCARED/AFRAID: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Feeling afraid or scared; For all the other Age Ranges: In the past month, how much of a problem has your child had with: Feeling afraid or scared? Standard Version: Self: In the past one month, how much of a problem has this been for you: I feel afraid or scared; Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Feeling afraid or scared; For all the other Age Ranges: In the past 7 days, how much of a problem has your child had with: Feeling afraid or scared;? Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I feel afraid or scared.
Data Type Numeric Values
Population Pediatric
Measurement Type
Field Size
Minimum Value
Maximum Value
Domain Outcomes and End Points
SubDomain Quality of Life/Patient Reported Outcomes
CRF Module Pediatric Quality of Life Inventory (PEDSQL)
Alias Aliases for variable name not defined
Classification Supplemental
Copyright/Trademark
Previous Title
References

“Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23.

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Version Date 2016-06-06T15:30:25
Version Number 1