Cerebral Palsy Research Network Blog

_NINDS CDE


Field Value
CDE ID C50444
CDE Name Child and Adolescent Scale of Environment (CASE) – Inadequate lack of information child diagnosis condition intervention approach indicator
Variable Name CASEInaLacInfChiDiaConIntApInd
Definition

The indicator relating to there being an inadequate amount or lack of information about the child’s diagnosis or condition or interventions or approaches, as part of the Child Adolescent Scale of Environment (CASE)

Description
Instructions

Please put an X in the box under the appropriate column

Input Restrictions Single Pre-Defined Value Selected
Permissible Values
Question Text Inadequate or lack of information about your child’s diagnosis or condition or intervention approaches (e.g., educational, rehabilitation or medical)
Data Type Alphanumeric
Population Adult, Pediatric
Measurement Type
Field Size
Minimum Value
Maximum Value
Domain Outcomes and End Points
SubDomain Family and Environment
CRF Module Child and Adolescent Scale of Environment (CASE)
Alias Aliases for variable name not defined
Classification Supplemental
Copyright/Trademark
Previous Title
References

1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents’ use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe’er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.

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Version Date 2016-07-26T11:16:40
Version Number 1