Cerebral Palsy Research Network Blog

_NINDS CDE


Field Value
CDE ID C21951
CDE Name Pediatric Quality of Life Inventory (PedsQL) – Problem unable social activity skill peer difficulty scale
Variable Name PedsQLNotDoThingScl
Definition

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL).

Description

Never;Almost never;Sometimes;Often;Almost Always;

Instructions

On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help.

Input Restrictions Single Pre-Defined Value Selected
Permissible Values

0;1;2;3;4;

Question Text SOCIAL FUNCTIONING: DOING THINGS: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do; For all other Age Ranges: In the past month, how much of a problem has your child had with: Not being able to do things that other children his or her age can do? Standard Version: Self: In the past one month, how much of a problem has this been for you: I cannot do things that other kids my age can do. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do; For all other Age Ranges: In the past 7 days, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do. Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I cannot do things that other kids my age can do.
Data Type Numeric Values
Population Pediatric
Measurement Type
Field Size
Minimum Value
Maximum Value
Domain Outcomes and End Points
SubDomain Quality of Life/Patient Reported Outcomes
CRF Module Pediatric Quality of Life Inventory (PEDSQL)
Alias Aliases for variable name not defined
Classification Supplemental
Copyright/Trademark
Previous Title
References

“Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23.

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Version Date 2016-06-06T15:52:31
Version Number 1